Facioscapulohumeral Muscular Dystrophy : FSHD one of the the most prevalent forms of muscular dystrophy
Last weekend, January 25-27, 2019, a force descended upon the Chicago O’Hare airport. And we’re not talking about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened for the FSH Society’s inaugural volunteer leadership summit for two days of intensive learning, sharing, and networking – all to train them to become effective, … Read more of “Our inaugural volunteer leadership summit” »
This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast. These Volunteer Leaders are paving the way for their communities to raise funds and increase awareness! 5 Brave Walk Pioneers have agreed to attend monthly training sessions, beta-test … Read more of “Walk Pioneers Lead the Way!” »
We are excited to announce the launch of our first nationally branded event, the Walk & Roll to Cure FSHD. This signature fundraising event will take place in September and early October 2018 in several locations around the country, with additional sites being added in 2019. FSH Society Walk & Roll fundraising events … Read more of “Walking & Rolling Toward a Cure!” »
When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband Tom says, “She’s taken a lot of that fear and depression and turned it into something really good.” After months of thinking about what kind … Read more of “With a Sense of Urgency” »
The FSH Society’s Colorado Committee hosted their first ever local fundraiser on Saturday September 10, 2016 – a 5K WALK & ROLL at Phillip S. Miller Park in beautiful Castle Rock, Colorado! Thanks to all of our participants, sponsors, and donors, we are proud to say we generated nearly $19,000!
Make dinner a selfless act by joining us for a fundraiser to support the Walk & Roll to Cure FSHD! Just come into the Chipotle at 5642 Allen Way, Space 104 in Castle Rock, CO on Tuesday, September 13th between 5pm and 9pm MT. Be sure to bring THIS FLYER or show it to the cashier on your smartphone. The … Read more of “Chipotle Fundraiser in Castle Rock, CO” »