Walk Pioneers Lead the Way!

This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast.  These Volunteer Leaders are paving the way for their communities to raise funds and increase awareness! 5 Brave Walk Pioneers have agreed to attend monthly training sessions, beta-test … Read more of “Walk Pioneers Lead the Way!” »

With a Sense of Urgency

When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband Tom says, “She’s taken a lot of that fear and depression and turned it into something really good.” After months of thinking about what kind … Read more of “With a Sense of Urgency” »

Walk & Roll to Cure FSHD

The FSH Society’s Colorado Committee hosted their first ever local fundraiser on Saturday September 10, 2016 – a 5K WALK & ROLL at Phillip S. Miller Park in beautiful Castle Rock, Colorado! Thanks to all of our participants, sponsors, and donors, we are proud to say we generated nearly $19,000!