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FSH Society News

Losmapimod clinical trial protocol has been posted

Fulcrum Therapeutics has posted on clinicaltrials.gov the protocol for its upcoming clinical trial of losmapimod. The trial is NOT YET RECRUITING volunteers. As trial sites open up for volunteer enrollment, the FSH Society will be sending alerts to patients who reside in the geographic area of a trial site. How can you make sure you … Read more of “Losmapimod clinical trial protocol has been posted” »

World FSHD Day highlights

World FSHD Day was a HUGE Success! Thank you to all of you who hosted events and participated! Here are a few highlights: The Tampa Chapter and George Pollock Raced Across America with Team FSHD Skyland Trail The Atlanta Chapter lit up the King & Queen Buildings The New England Chapter lit up the Zakim Bridge The Arizona and Utah Chapters had … Read more of “World FSHD Day highlights” »

International FSHD Patient Advocacy Summit

Marseille meeting convenes delegates from 11 nations BY SHEILA HAWKINS, TRUSTEE, MUSCULAR DYSTROPHY UK FSH muscular dystrophy affects people of every nation and ethnicity, and the effort to develop treatments will undoubtedly require the participation of patients from multiple countries. With international clinical trials already under way and more on the horizon, it was more … Read more of “International FSHD Patient Advocacy Summit” »

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Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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