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FSH Society News

Facio selects first series of potential drug development candidates

We are sharing this news release from Facio, the Netherlands-based biotech founded by FSHD advocates and business leaders with the sole mission of developing treatments for FSHD. In this story, Facio announces that it has identified drug-like molecules that show promise in repressing DUX4, the gene believed to be a key driver of the disease. … Read more of “Facio selects first series of potential drug development candidates” »

We bring people together to fight FSH muscular dystrophy

The FSH Society connects patients like Katie Ruekert to a community of support so no one has to face this disease alone. We also work closely with thought leaders like Jeffrey Statland, MD, to connect research centers with one another to form a clinical trial research network, which is vital to the future of FSHD … Read more of “We bring people together to fight FSH muscular dystrophy” »

Accessibility Hacks, mobility aids, and tips (Part 3 of 3)

More useful tips from Paul Shay of Groton, Massachusetts. For past postings see Accessiblity Hacks Part 1 and Part 2. Reacher-Grabbers. I have four of these―one for the garage (I’ve dropped my keys more than once), two for the main living area of our house, and one for upstairs. Three of them are “cheap-o” models I got … Read more of “Accessibility Hacks, mobility aids, and tips (Part 3 of 3)” »

Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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