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FSH Society News

DUX4 structure unveiled

MINNEAPOLIS, MN- December 12, 2018 – New research by University of Minnesota scientists has revealed the three-dimensional structure of the DUX4 protein, which is responsible for the disease, facioscapulohumeral muscular dystrophy (FSHD). Unlike the majority of genetic diseases, FSHD is not caused by a protein that is missing or not functioning properly. Rather it is … Read more of “DUX4 structure unveiled” »

“Building the house” for FSHD therapies

Patients who volunteer for research are the keystone of drug development efforts. Without them, the entire edifice built by teams of biologists, chemists, doctors, and other PhDs and MDs, would collapse. Patient involvement is more important than ever now, as many companies are starting to develop drugs. They urgently want to know, what does it … Read more of ““Building the house” for FSHD therapies” »

Holiday gift ideas

If you are scrambling for last-minute holiday gifts to delight the FSHers in your life, here are a few suggestions. We’d love to hear about your best holiday gift ideas in the comments section! Reusable drinking straws. While FSHD can make it hard for some to sip through a straw, many others rely on straws … Read more of “Holiday gift ideas” »

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Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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