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FSH Society News

Carden Wyckoff elected to Board of Directors

Youngest member, with a passion for advocacy and fundraising The FSH Society is pleased to announce that Carden Wyckoff was elected to serve on the Board of Directors on September 26, 2017. In joining the Board just two years after graduating from college, she becomes the youngest director in the history of the Society. Carden … Read more of “Carden Wyckoff elected to Board of Directors” »

An FSHD Antisense Therapy Primer

Q&A With Dr. Yi-Wen Chen by JIM ALBERT, Eldersburg, Maryland Antisense therapy is a form of treatment for genetic disorders. In the past year antisense drugs have been approved by the FDA for the treatment of two types of muscular dystrophies: some forms of Duchenne muscular dystrophy, and spinal muscular atrophy. While antisense therapy for the … Read more of “An FSHD Antisense Therapy Primer” »

FSHD Family Day Conference in Los Angeles

The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for an afternoon of intensive learning, socializing, and networking. Hear from expert clinicians about best practices in the care of FSH muscular dystrophy health issues, including … Read more of “FSHD Family Day Conference in Los Angeles” »

Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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