Get Involved in the Fight to Cure FSHD

Newly Diagnosed?

FSH Society News

Industry collaborative workshop on FSHD clinical trial readiness

Yesterday, the FSH Society convened a landmark meeting at the Tommy Douglas Conference Center, a stone’s throw from the headquarters of the Food and Drug Administration (FDA). Several FDA regulators attended in addition to researchers from seven biopharmaceutical companies, academic scientists who are leading the effort to prepare the field for clinical trials, and representatives … Read more of “Industry collaborative workshop on FSHD clinical trial readiness” »

The 11-step challenge

At the close of 2018, two adventurers accomplished what heretofore was thought impossible – they each traversed Antarctica solo, unaided, on foot.  One of these intrepid souls, Louis Rudd, when asked what he did to keep going, retold a story about Robert Falcon Scott’s 1912 failed attempt. Someone had calculated that had Scott taken “just … Read more of “The 11-step challenge” »

Bay Area FSHD Family Day Conference

Register here! Join us on Sunday, April 28, for our Bay Area FSHD Family Day conference. It will be held from 1:00-6:00 pm at the beautiful Li Ka Shing Center on the campus of the Stanford University of School of Medicine. Co-organized with Dr. John Day, director of Stanford’s FSHD research center, this year’s conference … Read more of “Bay Area FSHD Family Day Conference” »

All News »

Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

Learn More »