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FSH Society News

Virginia Commonwealth University joins FSHD network

The FSHD Clinical Trial Research Network (CTRN) has expanded to eight sites in the U.S. with the addition of Virginia Commonwealth University (VCU) in Richmond, Virginia. The VCU site is led by Nicholas Johnson, MD, FAAN, MSCI, who previously directed the FSHD CTRN site at the University of Utah. Johnson is Vice Chair of Research at Virginia … Read more of “Virginia Commonwealth University joins FSHD network” »

FSH Society Radio – Acupuncture for FSH muscular dystrophy

Join us via Facebook Live on Wednesday, February 27th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with Katelyn Michals, a national board-certified licensed acupuncturist who has been working with patients in the Greater Milwaukee Area since 2008. She graduated from the Midwest College of Oriental Medicine with a Master’s … Read more of “FSH Society Radio – Acupuncture for FSH muscular dystrophy” »

Playing the hand you’ve been dealt

By Landon Poindexter One thing I have come to learn in my eighteen-year life is that no matter how hard you try, there is no avoiding hardships that are sent your way. How you deal with these hardships will define who you are. When obstacles come your way, you have two choices: play the cards … Read more of “Playing the hand you’ve been dealt” »

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Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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