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Charis Himeda talks about CRISPR and FSH muscular dystrophy

From the FSHD Society’s webinar series on facioscapulohumeral muscular dystrophy. Charis Himeda, PhD, of the University of Nevada Reno, discusses her groundbreaking work showing how CRISPR “gene editing” technology can be used to repress the DUX4 gene implicated in FSHD, and answers questions from the audience. Check out her video below. If you have further … Read more of “Charis Himeda talks about CRISPR and FSH muscular dystrophy” »

FSHD Society Announces 2020 Conferences

From Yahoo News The nation’s capital will host the world’s premier conferences on facioscapulohumeral muscular dystrophy for all stakeholders The FSHD Society announced today that its 27th annual International Research Congress (IRC) will be held on June 25-26, 2020, at the Washington Hilton in Washington, DC. It will be followed on June 27-28 by FSHD … Read more of “FSHD Society Announces 2020 Conferences” »

Mika Mae’s story

Editor’s note: Mika Mae Jones passed away in June 20, 2019, at age 32 after sustaining severe head trauma from a fall. The FSHD community mourns her tragic loss. She wrote this essay for us shortly before her death. We publish it in her honor and memory. With fellow FSHDer, Alexandrea Comstock, Mika Mae co-founded … Read more of “Mika Mae’s story” »

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FSHD Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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