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FSH Society News

MRI-guided biopsy shows promise for clinical trials

Method may predict DUX4 activity in patients’ muscles A central tenet of modern FSH muscular dystrophy research is that the muscle damage in this disease is caused by a gene called DUX4. Normally silent in adult skeletal muscle, DUX4 is expressed through a genetic aberration and triggers a shower of toxic molecular events. This idea … Read more of “MRI-guided biopsy shows promise for clinical trials” »

$100,000 matching gift challenge!

The time to act is now If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your continued support, this year we will: begin our Therapeutic Accelerator Project to clear the path to clinical trials and FDA approval of new treatments; expand … Read more of “$100,000 matching gift challenge!” »

Danny Kurtzman designs for life

The headquarters of Ezekiel Clothing is tucked in a bland office park in Irvine, California, but inside it’s anything but bland, with its too-cool-for-school interior of concrete, charred timber, and smoky steel. When I arrived there, tapping tentatively on an unmarked, tinted glass door, I wondered if I had come to the right place. Soon, … Read more of “Danny Kurtzman designs for life” »

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Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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