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FSH Society News

Webinar: Psychological interventions to improve well-being in muscle diseases

Note: The video will be posted only until May 31, 2018. Download Chris Graham’s Slide Deck. In this talk, focusing mostly on his group’s work in muscle disorders, Chris Graham, PhD, DPsychol, describes some of the findings from studies looking at what coping methods seem to be beneficial for well-being. He then describes some psychological … Read more of “Webinar: Psychological interventions to improve well-being in muscle diseases” »

Talk Radio: Mindfulness with Dr. Jennifer Egert

Join us on April 25th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Jennifer Egert, Ph.D., a clinical psychologist with FSHD who offers mindfulness based psychotherapy and workshops in Mindfulness Based Cognitive Therapy (MBCT) and mindful approaches to cope with stress and anxiety. You can stream the show on BlogTalkRadio or listen and … Read more of “Talk Radio: Mindfulness with Dr. Jennifer Egert” »

Pro Golfer Morgan Hoffman’s FSHD diagnosis leads him to a higher calling

Contributed by MORGAN HOFFMANN West Palm Beach, Florida In November 2016, I was diagnosed with muscular dystrophy, an incurable disease. The last few months have been the most trying of my life. I have a new reality now, and a new purpose. In 2011, I started to notice that my right pec was deteriorating. I … Read more of “Pro Golfer Morgan Hoffman’s FSHD diagnosis leads him to a higher calling” »

Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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