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A time to express gratitude

Photo by David Goehring/Flickr/Creative Commons

Photo by David Goehring/Flickr/Creative Commons

Thanksgiving is that time of year when we pause to appreciate the blessings in our lives. There’s a good reason Thanksgiving is everyone’s favorite holiday, and it’s not just the pumpkin pie. Gratitude itself is a blessing, not only for the recipient but for the person who expresses gratitude. Feeling grateful makes you happier, even when life tests you sorely.

We at the FSH Society deeply appreciate every one of you who have supported the Society over the years. Thank you!

Maybe there is someone special in your life that you would like to honor with a Tribute Gift as an expression of your gratitude. Please join us in our quest to improve lives and give hope to everyone living with FSHD.

Honor your loved ones with a tribute gift.

Featured post

Special Black Friday offer!

Be first online to take advantage of this special sale from Anson Calder, a New York City-based travel accessories company. Anson Calder’s finely crafted, luxury goods were designed by and for busy professionals with FSHD. The sale starts this Friday and continues through next Monday, November 30. The sooner you buy, the greater the discount. A portion of profits will be donated to the FSH Society!



Featured post

Gene interference technology used in FSH muscular dystrophy

Proof-of-principle study is the first to use CRISPR technology on the “repeat genome,” as well as its first successful use in primary human muscle cells

BOSTON – (November 3, 2015) – The FSH Society, the award-winning non-profit and global leader in the quest to cure Facioscapulohumeral Muscular Dystrophy (FSHD), announced that an FSH Society-funded research team led by Peter Jones, PhD, at the University of Massachusetts Medical School (UMMS) has successfully used a derivation of the CRISPR-based gene-editing method known as dCas9 to target and silence the DNA sequence implicated in FSHD. This genetic condition, which affects an estimated 1 in 8,000 people, is among the most common forms of muscular dystrophy. Continue reading

Washington Post features FSH muscular dystrophy story

Today’s Washington Post featured a report on work by a research team that was described in an FSH Society press release. The Post story, “How CRISPR could lead to a cure for muscular dystrophy,” provides an excellent description of the CRISPR/dCas9 technology that was used to suppress the expression of DUX4 and includes an educational video on CRISPR. Continue reading

Your gifts at work

11x5 Donor Report 12 pager FINAL SPREADS LR_Page_1What impact have your donations made this past year? Quite a lot! Check out our 2014-2015 YTD Donor Impact Report. Read up on what we’ve achieved and what we plan to tackle next year. We are deeply grateful to all who have helped fuel our growth and enabled the FSH Society to have a growing impact–giving support and hope to patients and families and driving research forward toward treatments and a cure.

Read, download and share the full report here.

Dogs destined to develop muscular dystrophy evade their genetic fate

SAB-LouKunkelGolden retrievers with the Duchenne mutation show that disease-modifying genes may provide routes to treat a genetic disorder; possible parallels to facioscapulohumeral muscular dystrophy.

Research led by Louis M. Kunkel, PhD, a member of the FSH Society’s board of directors and scientific advisory board, demonstrates that a disease might be treated by finding a gene that modifies the devastating impact of the mutant gene causing the disease. Continue reading

Thanksgiving Concert to benefit the FSH Society

ApostlesCreedFeaturing Apostles Creed
Sunday, November 22, 2015
2:00-4:30 pm

Unity United Church of Christ
2074 Huckleberry Highway
Berlin, Pennsylvania

Usher in the season of thanks with the music of Apostles Creed, a Contemporary Christian group, performing music by artists such as Casting Crowns, Third Day, Matt Maher, Sidewalk Prophets, Natalie Grant  and Susan Ashton, as well as country artists such as Lady Antebellum, Little Big Town, Lone Star, Carrie Underwood, Miranda Lambert and Rascal Flats. More details here.

Enroll in the Combined Federal Campaign!

CFCLogo2014The Combined Federal Campaign (CFC) is the world’s largest and most successful annual workplace charity campaign, with almost 200 CFC campaigns throughout the country and overseas raising millions of dollars each year. The FSH Society is featured on Best of the CFC! Federal, civilian, postal, and military employees can enroll to support charities during the campaign season (September 1 to December 15). Enroll using the FSH Society’s identification number 10239. Thank you for your support! Continue reading

2015 Festive Evening of Song

Screen Shot 2015-10-27 at 5.08.22 PMThe FSH Society Concert Committee will miss you this year but in lieu of a live event we hope you will kick up your heels and relax in your most comfortable chair to join us for a stay-at-home concert.

Featuring: Your favorite music accompanied by a delicious wine and nibbles!!

When: At your leisure

Where: Home sweet home

Parking: Your garage

While you may rest, the work of researchers to defeat FSHD cannot. We need your support more than ever and hope you will make a generous gift. Continue reading

Gene Interference Technology Used Against FSH Muscular Dystrophy Genetic Defect

dCas9 figProof-of-principle study is the first to use CRISPR technology on the “repeat genome,” as well as its first successful use in primary human muscle cells