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FSH Society News

Follistatin gene therapy strengthens muscle in FSHD mouse model

An experimental gene therapy has been shown to enlarge and strengthen muscles in a mouse model of facioscapulohumeral muscular dystrophy (FSHD). The study was published on November 15 in the Journal of Clinical Investigation Insight by Scott Harper, PhD, and his team at Nationwide Children’s Hospital. The study made use of mice developed by the … Read more of “Follistatin gene therapy strengthens muscle in FSHD mouse model” »

Honor someone you love this holiday season

None of us walks alone. There is always someone—a parent, teacher, friend—who guided, supported, or inspired you along your life’s journey. You can salute those who have traveled with you by making a truly meaningful gift. Your donation brings our families a step closer to a treatment for FSH muscular dystrophy. Wishing you a holiday … Read more of “Honor someone you love this holiday season” »

Our Guide for Schools

The FSH Society’s Guide for Schools is available online for download and print here. You can also request a hard copy by emailing your request to Created by a team of national experts, this booklet provides information about FSHD and the impact the disease can have on students’ experiences during the school day. The … Read more of “Our Guide for Schools” »

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Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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