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FSH Society News

New England chapter meeting talks

The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted our New England Chapter’s November 4th meeting, which began with a tasty lunch, followed by a series of talks about some of the cutting-edge research … Read more of “New England chapter meeting talks” »

Looking forward to a year of transformation!

Thank you for making 2018 extraordinary. 2019 will be even more so. We look forward to working together to turn our hopes into reality.   From all of us at the FSH Society

Webinar on swallowing and speech in FSHD

Wednesday, February 13, noon to 1:00 pm EST. Register here We are delighted to bring to you this live webinar with Kiera Berggren, a research speech-language pathologist (SLP) in the Department of Neurology at Virginia Commonwealth University. Berggren was previously part of the FSHD Clinical Trial Research Network (CTRN) site at the University of Utah … Read more of “Webinar on swallowing and speech in FSHD” »

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Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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