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FSH Society News

The 2018 FSHD International Research Congress

The field has made astonishingly fast progress by Charis Himeda, PhD, University of Nevada, Reno Nearly 150 researchers, clinicians, patients, and industry partners convened at the FSH Society’s 2018 International Research Congress, held in Las Vegas on June 8-9, 2018. The workshop reflected the major focus of the field: building on key discoveries in recent years … Read more of “The 2018 FSHD International Research Congress” »

Mid-Atlantic FSHD Family Day registration is open

The preliminary agenda and registration are now available for our first Mid-Atlantic FSHD Family Day Conference. It will be held in Baltimore, MD. Co-organized with Kathryn Wagner, MD PhD, and her team at the Kennedy-Krieger Institute, this meeting will update you on research ongoing at KKI as well as from other leading FSHD centers. Experts … Read more of “Mid-Atlantic FSHD Family Day registration is open” »

Spotlight: Skylar Conover

Ms. Wheelchair USA 2015-2016 By Nicky Williams Dexter If you haven’t heard of MS. Wheelchair USA 2015 and FSHer Skylar Conover, you are missing out. There is a reason why I chose her to be my very first official FSHer spotlight profile.  She is such a genuine friend with a sunny personality that so many of … Read more of “Spotlight: Skylar Conover” »

Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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