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FSH Society News

High-intensity exercise training in FSHD

by Amanda Hill If you or a loved one is affected by FSHD, or any muscular dystrophy for that matter, chances are that you’ve heard it’s best not to exercise, just to avoid damaging or “using up” what healthy muscle is left. There is a pervasive uncertainty and fear among patients and doctors alike that … Read more of “High-intensity exercise training in FSHD” »

Inaugural Walk & Roll Campaign a Tremendous Success!

by LEIGH REYNOLDS, Kansas City, Missouri When we began planning for the inaugural Walk & Rolls to Cure FSHD, a $105,000 fundraising goal felt ambitious. Then an incredible group of volunteer leaders stepped up to pioneer this national campaign in five communities across the US. They worked tirelessly to make magic happen, and their dedication, drive, … Read more of “Inaugural Walk & Roll Campaign a Tremendous Success!” »

And the new ICD-10 code for FSHD is…

The new ICD-10 code for Facioscapulohumeral muscular dystrophy is G71.02.  The International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) is a system used by physicians and other healthcare providers to classify and code all diagnoses, symptoms and procedures recorded in conjunction with hospital care in the United States. Codification means a disease is assigned … Read more of “And the new ICD-10 code for FSHD is…” »

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Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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