Get Involved in the Fight to Cure FSHD

Newly Diagnosed?

FSH Society News

Radio Show – Steven Blier, musician extraordinaire

LISTEN LIVE ON WEDNESDAY, SEPTEMBER 27, 2017, HERE. A podcast of the interview will be available at this link. This month’s radio show guest is Steven Blier, a pianist and go-to coach for some of the world’s most celebrated singers. Joining us also will be George Pollock, to tell us about his experiences riding in … Read more of “Radio Show – Steven Blier, musician extraordinaire” »

FSH Society Talk Radio: Interview with Dr. Charis Himeda

Wednesday August 30, 2017 9:00 pm EST/8:00 pm CST Tune in live or listen to the post-show recorded podcast HERE. We’re excited to welcome Charis L. Himeda, PhD, Research Assistant Professor at the Center for Molecular Medicine at the University of Nevada, Reno School of Medicine. She has worked in the fields of myogenesis and muscle … Read more of “FSH Society Talk Radio: Interview with Dr. Charis Himeda” »

Pappas Family Featured on Fox 25 Boston!

Fox 25 Boston recently shared the Pappas family’s journey with FSHD and youngest member, Lexi Pappas’ touching short documentary. Lexi Pappas of Natick, MA was diagnosed with the disease in grade school. Now a recent college grad, Lexi had shared the story of her mother, grandfather, and great grandfather all affected by the disease via … Read more of “Pappas Family Featured on Fox 25 Boston!” »

Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

Learn More »