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FSH Society News

Video: Molecular therapy for FSH muscular dytrophy

In this FSH Society webinar, Scott Q. Harper, PhD, of Nationwide Children’s Research Institute describes FSHD genetics and explains how gene and molecular therapy could be used to block the genetic mechanism that is thought to cause muscle degeneration in facioscapulohumeral muscular dystrophy. The talk is very understandable to non-scientists and conveys the real sense … Read more of “Video: Molecular therapy for FSH muscular dytrophy” »

Charity Navigator rates FSH Society as “Exceptional”

The FSH Society has earned its tenth consecutive 4-star Charity Navigator rating! According to Michael Thatcher, President & CEO of Charity Navigator, “Only 1% of the charities we rate have received at least 10 consecutive 4-star evaluations, indicating that FSH Society outperforms most other charities in America. This “Exceptional” designation from Charity Navigator differentiates FSH … Read more of “Charity Navigator rates FSH Society as “Exceptional”” »

Rediscovering the Freedom of Bicycling

by MICHELLE CHAUVIN  Sterling Heights, Michigan Bike riding is something I’ve always enjoyed. After my husband and I were married, we would drag our bikes down the stairs from our third-floor apartment for a four-mile ride and run every day after work. Seven years later we had our son, and two years after that our … Read more of “Rediscovering the Freedom of Bicycling” »

Calendar of Events

FSH Society events are held year round. Find an event near you »

Committed To Accountability & Transparency

FSH Society is committed to excellence and accountability to our donors.

Milestones in Advocacy

FSH Society has been instrumental in rewriting (2001) and helping reauthorize (2008 and 2014) the Muscular Dystrophy Community Assistance Research and Education Act.

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