FSHD Connect Conference

Flamingo Las Vegas

Our 2018 FSHD Connect conference will be held at the Flamingo Las Vegas on June 9-10. Register here.

FSHD Connect will bring together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building. Our meeting will feature talks by thought leaders on the latest in scientific research and medical management of FSHD, living with FSHD, and raising “an army of activists.” Breakout sessions will address topics to help you cope and live better with FSHD, including exercise and physical therapy, strategies for dealing with practical and emotional transitions, caregiving, “life hacks,” and much more.

FSHD Connect Conference Schedule:
Saturday, June 9, 2018 – 1:00 PM to 5:00 PM PST
Sunday, June 10, 2018 – 8:30 AM to 5:00 PM PST

CureFSHD Banquet:
A highlight of the conference will be the CureFSHD Banquet on the evening of Saturday, June 9, to celebrate the FSHD community. We will have “Researcher Roulette,” with FSHD researchers seated at every table to encourage great conversations and new friendships.

Can’t get to Las Vegas? We are also organizing dozens of local member meetings and regional events. Find out if there’s one near by checking out our event calendar.

Download 2016 FSHD Connect program here.
Slides and videos are now available here.

View details of our 2014 FSHD Connect conference.

View videos from our 2012 FSH Society patient conference

Questions? Contact us at info@fshsociety.org or call 781-301-6651.