FSHD Connect Conference

Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10. The next FSHD Connect has not yet been scheduled. In the meantime, you can connect with families and experts by attending one of our dozens of chapter and local support group meetings. Find out if there’s one near you by checking out our event calendar.

FSHD Connect brings together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building. The meeting features talks by thought leaders on the latest in scientific research and medical management of FSHD, living with FSHD, and raising “an army of activists.” Breakout sessions address topics to help you cope and live better with FSHD.

Browse past FSHD Connect conferences below:

Questions? Contact us at info@fshsociety.org or call 781-301-6060.

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