Wisconsin Chapter

Thank you for visiting the Wisconsin Chapter of the FSHD Society!

We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email: WisconsinChapter@fshsociety.org

Visit the FSHD Society Events calendar to search for upcoming events in your area!

Don’t forget to follow us on FACEBOOK!

Join Us for Our First Virtual Chapter Meeting

Sunday August 25th from 8 PM – 9 PM

We invite you to come support, empower, share, and network with the FSHD community. Patients, caregivers and family members welcome! 

Please see event details HERE. RSVP to Tim at WisconsinChapter@fshsociety.org.

Would you like to get involved? Simply fill out the form below: