Kansas City Chapter

Thank you for visiting the Kansas City Chapter of the FSHD Society which officially launched in August 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Join Us for Our Next Chapter Meeting on November 9th!

We will be meeting with Dr. Jeffrey Statland to discuss genetics from 1pm-3pm. Please RSVP HERE to attend this meeting! 

To contact Chapter Director Kiley Higgs directly, please email: KansasCityChapter@fshsociety.org

Visit the FSHD Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: