Greater Philadelphia Chapter

Welcome to the Greater Philadelphia Chapter page! 

This chapter was founded by Bill Maclean. We officially launched our Chapter on Sunday, September 29th, 2018. Thank you to everyone who made it to our event! Join our Chapter using the form below to stay in touch.

We hope you’ll be able to join us at the next Chapter meeting, Saturday May 18, 2019 at the Bryn Mawr Rehabilitation Hospital. Details & RSVP can be found on our Event Page! This promises to be an exciting meeting, with a tour of the facility, guest speakers, and insights on physical therapies focused on FSHD. You won’t want to miss it!

We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of the Greater Philadelphia chapter: