Testosterone and human growth hormone clinical trial for FSHD

Researchers at the University of Rochester in Rochester, New York, are looking for individuals with FSH muscular dystrophy who are interested in participating in a research study to learn more about a potential symptomatic therapy for FSHD. This study may help determine if a combination of drugs (recombinant human growth hormone [rHGH] and testosterone) can … Read more of “Testosterone and human growth hormone clinical trial for FSHD” »

An FSHD Antisense Therapy Primer

Q&A With Dr. Yi-Wen Chen by JIM ALBERT, Eldersburg, Maryland Antisense therapy is a form of treatment for genetic disorders. In the past year antisense drugs have been approved by the FDA for the treatment of two types of muscular dystrophies: some forms of Duchenne muscular dystrophy, and spinal muscular atrophy. While antisense therapy for the … Read more of “An FSHD Antisense Therapy Primer” »

FSH Society awards over $600K for new research

The FSH Society has awarded grants totaling $616,467 to seven research projects submitted for the February 2017 grant cycle. This brings total research funding by the Society for 2017 to $1,167,260.  To learn more about the projects that are receiving this new support, visit Grants We have Funded.

Hot off the press: FSH Watch

The latest issue of FSH Watch is here! Highlights: Clinical Trial Research Network receives major NIH award World FSHD Day 2017 FSHD Family Day Conference in Columbus, Ohio Bone health and FSHD FSH Society’s congressional testimony Why I donated tissue Ask the physical therapist (part 3) How can I use a planned gift to support … Read more of “Hot off the press: FSH Watch” »

FSHD Canada awards $20K for FSH Society research grant

The FSH Society is pleased to announce that it has received a grant of $20,000 from the FSHD Canada Foundation in support of an exciting, treatment-focused project, “Developing LNA-based therapy for facioscapulohumeral muscular dystrophy.”  “We are delighted to help Neil Camarta and his colleagues at FSHD Canada help make a huge impact on FSHD by … Read more of “FSHD Canada awards $20K for FSH Society research grant” »

FSH Society awards over a half million dollars for new research

The FSH Society, a world leader in combating facioscapulohumeral muscular dystrophy (FSHD), announced this spring that it has committed $550,792 in funding to six research projects that aim to break new ground in the search for a treatment and cure for FSHD. These grants follow the Society’s record-breaking $1.36 million awarded for total research funding … Read more of “FSH Society awards over a half million dollars for new research” »