$100,000 matching gift challenge!

The time to act is now

If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your continued support, this year we will:

  • begin our Therapeutic Accelerator Project to clear the path to clinical trials and FDA approval of new treatments;
  • expand our national chapter program, because a community of patients and families united around a collective goal is the only thing that has ever made a difference in the outcome of drug discovery and development.

The clock is ticking! This is why a group of visionary benefactors has pledged to match up to $100,000 in gifts made by May 31, 2019. By donating now, you will empower all of us to move forward with the urgency demanded.

Take action!


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