With a Sense of Urgency

When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband Tom says, “She’s taken a lot of that fear and depression and turned it into something really good.”

After months of thinking about what kind of fundraiser she could do, she created the Walk & Roll to Cure FSHD in Castle Rock, Colorado. Bringing hope and meeting other people with FSHD in the community was really important, Katie says, “creating a sense of community and, really family, more than anything. I’ve really found that in my FSH family.”

During the past year, hundreds of individuals like Katie have joined, acted, empowered themselves, and contributed to our mission. Their engagement and urgency has deepened our own passion for finding solutions to the problem of FSHD. We recognize that time equals lives, and we must find a way to bring safe and effective treatments to our patient community much more quickly!

The visionary leaders on our Board have pledged $­­­­­­­­­370,000 to our 2017 Campaign, and challenge you to match it, dollar for dollar. Make your gift before 11:59 p.m. on December 31, 2017, and we will count it toward the challenge.




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