Fox 25 Boston recently shared the Pappas family’s journey with FSHD and youngest member, Lexi Pappas’ touching short documentary.
Lexi Pappas of Natick, MA was diagnosed with the disease in grade school. Now a recent college grad, Lexi had shared the story of her mother, grandfather, and great grandfather all affected by the disease via her short documentary.
Check out the Fox 25 Boston segment below and also Lexi’s moving documentary created to raise awareness to the disease. You can also keep up with Lexi’s journey via her blog here.
Growing Up with FSHD: A Short Documentary by Lexi Pappas: