Thanks to our friend and fellow FSHD advocate in China, Ning Baisheng, our “About FSHD” brochure has been translated and adapted for readers in China. Baisheng says patients in China face the same problems as patients everywhere, as few physicians know about FSH muscular dystrophy. This brochure is a valuable educational tool not just for patients and families, but also for their doctors. We encourage everyone to keep a small supply on hand to bring to their next doctors’ appointments. You are our best evangelists, to educate the medical profession!
You can download the brochure here. If you would like a printed copy of the Chinese edition, please send your request to ningbaisheng001 @ 163.com.