FacioScapuloHumeral Muscular Dystrophy Society
Copyright ©1991-2008 FSH Society, Inc.
To contact the FSH Society, Inc. see bottom of page.
 
Information on the FSH Society, Inc.
[Paper]        Introduction to the FSH Society and Facioscapulohumeral Muscular Dystrophy FSHD
[Paper]        FSH Society Board of Directors, Scientific Advisory Board, Counsel and Staff
[Paper]        Make a Donation to Support FSHD Research!!!  The FSH Society 2008 Membership Application and Donation Form
[Link]   Request 2008 FSH Society Membership Materials
[Link]   New Research Projects!!  FSH Society Research, Fellows and Small Grants Funded as of May 1, 2008
[Link]   Meet Others with FSHD!!  The FSH Society International Patient-Researcher Meeting July 27, 2008 in Coralville, Iowa  (PDF)
[Link]   Infantile FSHD Clinic at the University of Iowa Hospitals and Clinic July 28, 2008 in Iowa City, Iowa (See page 4)  (PDF)
 
Information on FacioScapuloHumeral Muscular Dystrophy (FSHD)
[Paper]        FSH Society Patient Brochure on Facioscapulohumeral Muscular Dystrophy (FSHD)
[Paper]       FSH Society Patient Brochure on Facioscapulohumeral Muscular Dystrophy (FSHD)  (PDF)
[Paper]        FSH Society Patient Brochure informacion en espanol La Distrofia Facioescapulohumeral (DFEH)
[Link]   FSH Society's A Guide For FSH Muscular Dystrophy Patients And Physical Therapists
[Paper]        GeneTests:  International Directory of Genetic Testing Laboratories for FSHD
[Paper]        The NIH Home Page of the Muscular Dystrophy Coordinating Committee (MDCC)
[Paper]        The NIH Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers Web Site
[Paper]        NIH Workshop on Translational Research in Dystrophy: National Institutes of Neurological Disorders and Stroke (NINDS)
[Paper]        Muscular Dystrophy Research and Education Plan for the NIH submitted to the U.S. Congress
[Link]   13th International World Muscle Society (WMS) Congress 29 September 2008 – 2 October 2008 Newcastle upon Tyne, UK
[Paper]        Please join!!  The National Institutes of Health (NIH) National Registry of FSHD Patients and Family Members!
 
FSHD Online Conferences, Chat and Bulletin Board
[Link]      NEW!  FSHD Bulletin Board and Chat  
 
FSH Society Publications and Information (Comprehensive Material)
[Link]   FSH Society FY2009 Written Testimony U.S. Senate Appropriations for NIH Research on FSHD April 27, 2008 (PDF)
[Link]   FSH Society FY2009 Written Testimony U.S. House Appropriations for NIH Research on FSHD March 20, 2008 (PDF)
[Link]   FSH Watch Newsletter Winter 2008: 16 pages of news and updates! (PDF format)
[Paper]      FSH Society 2007 FSHD Research Consortium, San Diego, California:  Program/Abstracts, October 23, 2007 (PDF)
[Paper]      FSH Watch Newsletter Fall 2007: 12 pages of news and updates! (PDF format)
[Paper]      FSH Watch Newsletter Summer 2007: 52 pages of news and updates! (PDF format)
[Paper]      In Memory of Stephen J. Jacobsen May 3, 1945 - January 21, 2006 -- Eulogy by Daniel Paul Perez January 26, 2006 (PDF)
[Paper]      In Memory of Stephen J. Jacobsen, Karen L. Johnsen and William "Billy" Michael  -- July 16, 2006 Conference Dedication (PDF)
[Paper]      FSH Society FY2008 Written Testimony U.S. Senate Appropriations for NIH Research on FSHD March 30, 2007 (PDF)
[Paper]      FSH Society FY2008 Written Testimony U.S. House Appropriations for NIH Research on FSHD March 27, 2007 (PDF)
[Paper]      FSH Society FY2008 Oral Testimony (4 Minute) U.S. House Appropriations for NIH Research on FSHD March 27, 2007 (PDF)
[Paper]      FSH Society 2006 FSHD Research Consortium, New Orleans:  Program/Abstracts, October 9, 2006 (PDF)
[Paper]      FSH Society 2006 International Patient Researcher Network and Contact Day for FSHD Program Book July 16, 2006 (PDF)
[Paper]      FSH Society FY2007 Testimony U.S. Senate Appropriations for NIH Research on FSHD April 3, 2006
[Paper]      FSH Society FY2007 Testimony U.S. House Appropriations for NIH Research on FSHD March 31, 2006
[Paper]      FSH Society 2005 FSHD Research Workshop, Salt Lake City, Program/Abstracts, October 25, 2005 (PDF)
[Paper]      FSH Watch Newsletter Summer 2005: Vol 10, No. 1.  48 pages of news and updates! (PDF format)
[Paper]      FSH Society FY2006 Testimony U.S. House Appropriations for FSHD Research April 12, 2005
[Paper]      FSH Society FY2006 Testimony U.S. Senate Appropriations for FSHD Research April 1, 2005
[Paper]      FSH Society ASHG FSHD International Research Consortium Abstracts, October 26, 2004 (PDF)
[Paper]      FSHD: Clinical Medicine and Molecular Cell Biology by Upadhyaya and Cooper.  Book Overview/Order Form
[Paper]      FSH Society FY2005 Testimony U.S. House Appropriations for FSHD Research April 29, 2004
[Paper]      FSH Society FY2005 Testimony U.S. Senate Appropriations for FSHD Research March 31, 2004
[Paper]      FSH Society International Research Consortium Abstracts, November 2003 (PDF)
[Paper]      FSH Watch: Vol. 8, No. 2, Spring 2003 (PDF)
[Paper]      FSH Watch: Vol. 8, No. 1, Winter 2003 (PDF)
[Paper]      FSH Watch: Vol. 7, No. 1, Spring 2001 (PDF)
[Paper]      FSH Watch: Vol. 6, No. 1, Fall 1999 (PDF)
[Paper]      FSH Watch: Vol. 6, No. 1, Fall 1999
[Paper]      FSH Watch: Vol. 5, No. 1, Spring 1998
[Paper]      FSH Watch: Vol. 4, No. 1, Summer 1997
[Paper]      FSH Watch: Vol. 3, No. 2, Fall 1996 / Winter 1997
[Paper]      FSH Watch: Vol. 3, No. 1, Spring 1996
[Paper]      FSH Watch: Vol. 2, No. 2, Fall 1995
[Paper]      FSH Watch: Vol. 2, No. 1, Spring 1995
[Paper]      FSH Watch: Vol. 1, No. 2, Fall 1994
[Paper]      FSH Watch: Vol. 1, No. 1, Spring 1994

[Paper] Contact

Executive & Development Office 
Nancy Van Zant
Executive Director
FSH Society, Inc.
c/o BBRI R353
64 Grove Street
Watertown, MA 02472 USA
(617) 658-7878
(617) 658-7879 Fax
nancy.vanzant [@] fshsociety.org
Patient Resources Office
Carol A. Perez, M.Ed.
FSH Society, Inc.
( 781 ) 860 - 0501 
( 781 ) 860 - 0599 Fax 
carol.perez [@] fshsociety.org
Research Programs Office
Daniel Paul Perez
FSH Society, Inc.
( 781 ) 275 - 7781 
( 781 ) 275 - 7789 Fax 
daniel.perez [@] fshsociety.org

Internet: www.fshsociety.org

Information provided by The FacioScapuloHumeral Muscular Dystrophy (FSH) Society, Inc.
All Materials Copyright ©1991-2008 FSH Society, Inc.
Last Updated:  08 May 2008