Welcome to the FSH Society

Glad you found us! Come in.

We are the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. The FSH Society harnesses the power and insight of a patient-driven model, as it was founded on a promise between two research scientists with FSHD never to let the disease be forgotten or neglected. We are a cause without borders.

Please use this site to learn more about FSHD, to follow research advances, and to become a member of the FSH Society!

Donate today!

Get Involved! Have Questions? Call, E-mail, or Write Us!
Click HERE for details and support!

Support Our Work, Make a Difference!
Click HERE to make a contribution.

Consider the gift of stock in 2010! It may now be a better way for you to support the FSH Society. More

Newly Diagnosed? Want to Talk to Someone Who Understands?
Talk to one of our Peer-to-Peer Team members.

Above left: A microscope photo of a myoblast cell that will evolve into a skeletal muscle cell and muscle fiber.

Above right: A common first sign of FSHD, asymptomatic scapular fixator causing scapular winging and difficulty reaching above the shoulder level.

News & Events

OCT 21	The 2010 FSH Society International Research Consortium & Research Planning Meeting has been announced - Save the Date! More

JUL 30	The 2010 Int'l Patient and Researcher Network Meeting in Las Vegas, July 30-Aug 1st View the Final Program. Get information on Las Vegas airport transportation. More

MAR 15	Research pioneered by FSH Society leads to new discoveries using non-invasive MRI/MRS imaging of FSHD More

MAR '10	SAB to meet to consider new post-doctoral funding requests More

FEB 01	2009 Fundraising Challenge for FSHD exceeds goal! Thank you for many generous gifts, EXCEEDING the goal of $131,000 offered by members of the board of directors and other major donors More

FEB '10	2010 Winter issue of Watch, and Annual Donor Report, Now Available More

JAN '10	NIH releases information on 2009 funding for MD and FSHD research More

DEC '09	SAB funds 6 new post-doctoral research awards More

Oct '09	Key Facts About 2009 H1N1 Flu Vaccine from CDC. Please click here for details

Oct '09	Individuals with FSHD are advised by U.S. CDC to receive the flu shot and NOT the nasal spray flu vaccine! Please click here for details

May '09	Consortium of European government and private partners releases report showing that Facioscapulohumeral Muscular Dystrophy FSHD is the most Prevalent Muscular Dystrophy. Please click here for details

	Meet others with FSHD online at our Facebook and Yahoo! Groups forums, click here

	For a copy of the FSH Society FSHD Patient Brochure, click here

	For a copy of the FSH Society's Physical Therapy Brochure, click here

	Volunteers Needed! FSH Society & Johns Hopkins School of Medicine Recruiting Volunteers with FSHD for Clinical Research More

	FSH Society Submits FY2010 Written Testimony U.S. Senate Appropriations for NIH Research on FSHD More

	Consortium of European government and private partners releases report showing that Facioscapulohumeral Muscular Dystrophy FSHD is the most Prevalent Muscular Dystrophy. Please click here for details

	U.S. DHHS NIH BBRI Sen. Wellstone MD CRC on Biomarkers for Therapy of FSHD web site now online More

Jul

Las Vegas, Nevada
The 2010 International Patient & Researcher Network Meeting, July 30-Aug 1st

View the Final Program. Get information on Las Vegas airport transportation. More

OCT 09	Second Annual Walk 'n' Roll for FSH Muscular Dystrophy Cape Cod, Massachusetts Online Registration & Event Giving Now Available! More

OCT 09	First Annual Southern California Walk 'n' Roll for FSH Muscular Dystrophy Heritage Park Irvine, California Online Registration & Event Giving Now Available! More