Tag Archives: world FSHD day

Help us promote World FSHD Day with a selfie video!


World FSHD Day

Help us raise public awareness of FSH muscular dystrophy by making a video selfie, urging everyone to take part in this year’s World FSHD Day awareness campaign. Orange Slice SmileRaisingAware

Orange is the international color of World FSHD Day – so we’re using an orange slice to spread the word. All you need to do is make a short video of yourself sharing the message using the script below. Feel free to adapt the script to your own style and voice. Try to get good audio quality, then send your video by DropBox to June.Kinoshita@fshsociety.org. Continue reading

Thank you, Spencer and Carden!

This week, Spencer Wyckoff competed on NBC’s “American Ninja Warrior” to raise awareness and funds for the FSH Society. Before taking the course, Spencer and his sister, Carden, described their family’s experience with FSHD. If you missed it, watch a recap of their inspirational story here.

Carden created this video to thank their supporters and to encourage everyone to take part in World FSHD Day on June 20, 2016.

Thank you, Spencer and Carden, for letting us be a part of your journey and for bringing FSHD awareness to millions of Americans!