The FSH Watch 2016 Issue 2 is out!

Our newest issue of the FSH newsletter is here!  We’re so excited to share new scientific updates, patient stories, and the latest FSH Society initiatives. Highlights include: The creation of a Clinical Trial Research Network of universities, designed to speed the search for treatments for FSH (cover story); Patient’s brother competes in American Ninja Warrior … Read more of “The FSH Watch 2016 Issue 2 is out!” »

FSH Watch Spring 2014

You can read and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with some of the world’s foremost researchers and clinicians for two days of immersive learning and networking. The latest scientific advances including the discovery of two … Read more of “FSH Watch Spring 2014” »

FSH Watch Winter 2014

Highlights include: Report from the 2013 International Research Consortium meeting in Cambridge, Massachusetts. Advances in basic research, clinical trials and future drug targets. Introducing our new Celebrity Honorary Board. Stars from film, TV, music and sports sign on to help raise awareness. University of Massachusetts Medical School opens new FSHD research center and clinic. Photos … Read more of “FSH Watch Winter 2014” »