Mom and Daughter with FSHD featured in Muscular Dystrophy News!

Two of our members, Diane and Lexi Pappas, were featured in Muscular Dystrophy News, sharing their struggles about living with FSHD.  Diane is Lexi’s mother and the two live in Massachusetts.  Lexi shares both the difficulty she had about opening up about her disease and the sense of liberation she has gained from raising awareness: … Read more of “Mom and Daughter with FSHD featured in Muscular Dystrophy News!” »