Facioscapulohumeral Muscular Dystrophy : FSHD one of the the most prevalent forms of muscular dystrophy
You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge our deep appreciation for your past support and generosity. Many of the advancements of this year would not have been possible without you. It has … Read more of “Blazing a Trail to the Future” »
FSH member Kathy Senecal will be fundraising for the FSH Society in the coming months at four different craft fairs through her business, Not Your Mother’s Yarn. 100% of the net proceeds will be donated to the FSH Society. Kathy offers a large selection of hand-spun yarns, as well as hats, snoods, fingerless gloves, and … Read more of “Not Your Mother’s Yarn” »
Corporate Matching Gifts: Does Your Company Match Your Donation? Did you know many companies offer a matching gift program to encourage philanthropy among their employees? And that some companies will even match to spouses, retirees, and board members? By simply completing the matching gift form from your employer, you may be able to double, or even … Read more of “Double Your Donation… Easily and Free!” »
The revolutionary Outrider Horizon Trike could be yours! Bids accepted until 12 noon ET April 11th, 2017 We are auctioning off a Horizon Off-road Electric Trike – model 210A, an adaptive, all-terrain electric trike that can be customized for riders of all abilities. This revolutionary Horizon Trike will be shipped to you right off the production … Read more of “Win a Horizon Off-Road Electric Trike: Bid Now!” »
by June Kinoshita During the month of June of this year, the FSHD community will enjoy the thrill of having one of its own lead an eight-person team in the Race Across America (RAAM), a bicycle race from Oceanside, California, to Annapolis, Maryland. The team, recruited by George Pollock, plans to compete in the Open … Read more of “Team FSHD Cycling eyes epic race in June 2017” »