Walk Pioneers Lead the Way!

This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast.  These Volunteer Leaders are paving the way for their communities to raise funds and increase awareness! 5 Brave Walk Pioneers have agreed to attend monthly training sessions, beta-test … Read more of “Walk Pioneers Lead the Way!” »

#GivingTuesday 2017 is Just Around the Corner!

Join us on Tuesday, November 28th, 2017 as we participate in the 6th annual #GivingTuesday! #GivingTuesday is a global day of giving fueled by social media and collaboration following the widely recognized shopping days of Black Friday and Cyber Monday. Known as the unofficial kickoff to the giving season, every year philanthropies are celebrated and communities … Read more of “#GivingTuesday 2017 is Just Around the Corner!” »

2017 RAAM Kickoff Dinner

Race Across America fundraising for FSH muscular dystrophy June 15, 2017 from 4:00 – 7:00 pm Urge Gastropub & Whiskey Bank 2002 S Coast Hwy, Oceanside, CA 92054 Please complete the form below to purchase tickets and/or make a donation. Receive a free ticket for collecting $150 or more in donations. Click here to download … Read more of “2017 RAAM Kickoff Dinner” »

Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail

FSH Society Ambassador Carden Wyckoff and her brother Spencer are at it again! This time, they will be traveling 79-miles through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. Throughout the hike, sponsored by Vestigo, Spencer will be carrying his sister Carden on his back using a specially … Read more of “Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail” »