Tag Archives: Fundraiser

Win a Horizon Off-Road Electric Trike: Bid Now!

The revolutionary Outrider Horizon Trike could be yours!
Bids accepted until 12 noon ET April 11th, 2017

We are auctioning off a Horizon Off-road Electric Trike – model 210A, an adaptive, all-terrain electric trike that can be customized for riders of all abilities. This revolutionary Horizon Trike will be shipped to you right off the production floor, and can be customized to your specifications. Check it out in the video above! Only a limited number are in production so the only way you can get your hands on the extraordinary Horizon is to bid on it by April 11th, 2017!

ElectricBike.com says “This counts as my favorite test ride of any production electric bike ever…Outrider trikes are so much fun to ride, that anyone spending a day on one in the right terrain will probably not forget that day for the rest of their life.”

The Trike was donated by one of the initial backers of the trike’s successful Kickstarter campaign, so 100 percent of this sale will go toward supporting the FSH Society’s mission! Continue reading

2017 RAAM Kickoff Dinner

Race Across America fundraising for FSH muscular dystrophy

June 15, 2017 from 4:00 – 7:00 pm
Urge Gastropub & Whiskey Bank
2002 S Coast Hwy, Oceanside, CA 92054

Please complete the form below to purchase tickets and/or make a donation. Receive a free ticket for collecting $150 or more in donations. Click here to download RAAM Fundraising Toolkit. Once you have collected the donations, please mail to FSH Society at 450 Bedford Street, Lexington, MA 02420 along with donor information.

Learn more about Team FSHD Cycling here!

Volunteers & Committees forming now for:
Raffles, Auction Items, Media contacts, Donations, Sponsors, Graphic Design
Contact: Amy Bekier at amy.bekier@fshsociety.org or (619) 972-0993

PLEASE NOTE: WE ARE CURRENTLY TESTING THE FORM BELOW.

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#GivingTuesday is Just Around the Corner!

Join us on Tuesday, November 29, 2016 as we participate in the fifth annual #GivingTuesday!

Giving Tuesday Save the Date

Entering its fifth year, #GivingTuesday is a global day of giving fueled by social media and collaboration following the widely recognized shopping days of Black Friday and Cyber Monday. Known as the unofficial kickoff to the giving season, every year philanthropies are celebrated and communities around the world join together with the common goal of encouraging giving to a worthy cause.

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Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail

FSH Society Ambassador Carden Wyckoff and her brother Spencer are at it again! This time, they will be traveling 79-miles through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD.

piggyback adventures

Throughout the hike, sponsored by Vestigo, Spencer will be carrying his sister Carden on his back using a specially designed harness. Their father, Kurt, and sister, Virginia, are also set to join them on the adventure to spread the message that no matter what physical limitations are placed on you anyone can reach their goals.

“Being able to walk with someone on your back is an intrinsic reward,” says Spencer. “We are looking to prove that this journey, carrying someone on your back for 79 miles, is not impossible, and that Carden and others do amazing things themselves every day.”

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Atlanta Kickoff Event October 15th, 2016!

If you live in the Atlanta area, join us for a casual dinner and cocktails as we begin planning our next fundraising event!

Atlanta Gathering InvitationThank you to Meredith & Mica Maddry who have agreed to host our get-together at their home:  1423 Lachona Ct. NE Atlanta, GA  30329

SATURDAY, OCT 15th, 2016 at 7PM

Please RSVP to FSHDRSVP@gmail.com, or use THIS LINK.

Questions? Carden Wyckoff: 770-316-1900, or FSHDRSVP@gmail.com

Meredith’s home is wheelchair accessible with an accessible restroom. Though the driveway is fairly steep, the carport at the top of the driveway will remain open for drop-offs and pick-ups in front of the ramp entrance to the home. Parking is available on the street.

Contribute to this event HERE.

See you there!

Chipotle Fundraiser in Castle Rock, CO

Eat For Change_ChipotleMake dinner a selfless act by joining us for a fundraiser to support the Walk & Roll to Cure FSHD!

Just come into the Chipotle at 5642 Allen Way, Space 104 in Castle Rock, CO on Tuesday, September 13th between 5pm and 9pm MT. 

Be sure to bring THIS FLYER or show it to the cashier on your smartphone. The FSH Society will get 50% of all proceeds from each purchase using this flyer!