We Want You to #ShareYourVictory!

At this year’s Inaugural CureFSHD National Gala on November 11, we look to celebrate not just the victories of our tireless researchers and fearless ambassadors, but also the small (yet no less important) accomplishments that individuals with FSHD experience every day. To celebrate the strength of our Society, please share your own personal victory with … Read more of “We Want You to #ShareYourVictory!” »

Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail

FSH Society Ambassador Carden Wyckoff and her brother Spencer are at it again! This time, they will be traveling 79-miles through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. Throughout the hike, sponsored by Vestigo, Spencer will be carrying his sister Carden on his back using a specially … Read more of “Carden and Spencer Wyckoff to Set off on Piggyback Adventure through the Appalachian Trail” »

How to organize a successful auction

Here’s our first “Fundraising Masterclass” webinar featuring Terry Colella, who shares the lessons she has learned from organizing her highly successful annual auction. Questions? Post them under comments below!