Update on Clinical Trial A083-02: a Phase 2 Clinical Study of ACE-083 in FSHD

The FSH Society has a long history of partnering with biotech and pharmaceutical companies to facilitate recruitment of patients and families for focus groups, provide patient input to clinical outcome measures, and participation in clinical trials. The Society also assists companies by providing connections, insights and scientific information in the research, therapeutic and clinical areas. … Read more of “Update on Clinical Trial A083-02: a Phase 2 Clinical Study of ACE-083 in FSHD” »

FSH Watch Winter 2014

Highlights include: Report from the 2013 International Research Consortium meeting in Cambridge, Massachusetts. Advances in basic research, clinical trials and future drug targets. Introducing our new Celebrity Honorary Board. Stars from film, TV, music and sports sign on to help raise awareness. University of Massachusetts Medical School opens new FSHD research center and clinic. Photos … Read more of “FSH Watch Winter 2014” »