World FSHD Day

Join us in participating in our Orange Slice Selfies campaign. With orange as the official color of World FSHD Day, we’re asking that supporters post a photo of themselves to social media using an orange slice in place of their smile with the official hashtag #WorldFSHDDay.

Download World FSHD Day Toolkit.

Additionally, we encourage supporters throughout the country to reach out to their local Department of Public Works and ask them to light up notable landmarks (bridges, buildings) orange in honor of patients and families. With Boston’s famed Zakim Bridge set to be lit orange on June 20, we would be thrilled to have the country from coast to coast light up in orange!

Our World FSHD Day Toolkit provides examples of social posts to share your selfies, an email template to share Orange Slice Selfie photos with reporters at your local newspaper, materials to assist in contacting your local Department of Public Works to light up your local landmark orange, and letter templates to local and state government requesting an official proclamation of FSHD Awareness Day.

Don’t forget to share your photos with us using #WorldFSHDDay on June 20! Please feel free to contact us at with any questions.