Daniel Paul Perez, President & CEO and Co-founder, FSH Society, is one of the nation’s leading advocates and experts on living with facioscapulohumeral muscular dystrophy (FSHD), FSHD molecular and genetics research, and clinical aspects of the disease. Daniel established the Society in 1987 after meeting fellow FSHD patient and Society co-founder, Stephen Jacobsen. Daniel developed the by-laws of the Society, incorporated the organization as a nonprofit corporation, and organized the Board of Directors and the Scientific Advisory Board. Read full bio...

He has testified nearly 50 times before congressional committees to seek funding for FSHD research and meets regularly with researchers, clinicians, and the heads of the National Institutes of Health and other federal agencies to help organize meetings, symposia, research plans, white papers, and research on dystrophy. In 2001, Daniel was a key architect and force in the passage and implementation of the Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2001 (“MD-CARE Act”), which was signed into law on December 18, 2001. The MD-CARE Act mandates the National Institutes of Health (NIH) and other federal agencies working on FSHD and other muscular dystrophies to rapidly accelerate research and efforts on these diseases. He serves as a Special Government Employee and member of the 15-member Federal Advisory Committee authorized by the MD-CARE Act, called the Muscular Dystrophy Coordinating Committee (MDCC).

A graduate of Harvard College, Daniel started his career in neurobiology and muscle research as an undergraduate. He has an extensive background in software and database design, and works on corporate MIS and financial systems, marketing research software, and data acquisition. He was chief architect and designer of Oracle’s multi-dimensional database application. Daniel’s expertise in data warehousing and databases led to his contributions in bio-informatics and databases for the Human Genome Project in Massachusetts. He also worked as a senior database specialist on software designed for monitoring clinical drug trials.

Daniel and his wife Sue live in Bedford, Massachusetts.

June_8612-soft-200x200June Kinoshita, Chief Operating Officer, graduated from Harvard College, where she concentrated in physics. She joined the FSH Society in August of 2012. Previously, June co-founded and served as Executive Editor of the Alzheimer Research Forum, the pre-eminent Web community for researchers in neurodegenerative disorders. June has worked closely with a variety of foundations to develop initiatives for multiple sclerosis, schizophrenia, amyotrophic lateral sclerosis, Parkinson’s disease, and other disorders. She is also an entrepreneur, having co-founded N-of-One, Inc., a pioneering personalized oncology company. Read full bio...

June serves on the National Board of the BrightFocus Foundation. June began her career as a science journalist, working as a writer and editor for Scientific AmericanScience, The New York Times Magazine, and many other national publications. June and her husband, Tod Machover, have two daughters and live in Waltham, MA, where they tend to cats, goats, and a farm dating to 1790. She enjoys music of all genres, from opera to American Idol.

Lisa SchimmelLisa C. Schimmel, Director of Finance & Administration, joined the FSH Society in April 2016.  Lisa is a CPA and has a wealth of experience in small to medium size non-profits as well as for-profit companies.  She brings to the FSH Society her expertise in accounting, reporting, and strategic planning.  Prior to joining the FSH Society, she was the CFO at Diagnostics for All (DFA). Read full bio...

Prior to DFA, she was the Director of Finance and Human Resources at the Rose Fitzgerald Kennedy Greenway Conservancy.   Lisa taught financial and managerial accounting at Boston College from 1992 to 2011.   While teaching, she also served on several non-profit boards and finance committees.   Prior to her teaching experience she was a manager in Arthur Andersen’s Enterprise Group.

BethProEngaged-rt-color_cropBeth Johnston, Development Officer, joined the FSH Society in August of 2016 to assist the Executive Director and the leadership team to create, execute and grow the Society’s fundraising plan and ongoing efforts. Her long history with the Society includes fundraising, Board membership, and grant writing. She will continue her commitment to raising awareness of both the disease itself and the function of the Society in this new development role.Read full bio...

Prior to joining the Society, she was Founder & CEO of Social Bridges, a Denver-based social media marketing agency. She has also worked in information technology, project management, high-technology consulting, telecommunications and real estate.

The Colorado native received a Bachelor of Science, Business Management & Finance from Colorado State University and a Master of Business Administration from the University of Denver. Beth resides in Denver, Colorado, with her husband, Jeff, and two daughters Samantha and Nicole.

Robyn O’Leary, Executive Assistant, joined the FSH Society in May 2016 to provide administrative support and coordinate the society’s meetings and events. Before joining the society, she was Senior Education Coordinator and Marketing Compliance Liaison at Dentsply Sirona where she worked in a broad range of administrative and marketing roles over 15 years. Robyn lives in Billerica, MA with her husband and two children.


Kate PuzzangheraKathryn (Kate) Puzzanghera, Gifts and Membership Database Specialist, joined the FSH Society in October 2016 to help provide administrative and database support for our members and donors.  She is a recent graduate of Wellesley College, where she received her degree in Religion.  At Wellesley, Kathryn was a member of her college’s 504/ADA oversight committee and a founding member of the College’s disability advocacy organization, Wellesley Voices for Disability, as first Secretary and then President, organizing policy initiatives, resource sharing, and peer-to-peer support.