Press releases

Media contact:
Jennifer Toole
SHIFT Communications
(617) 779-1828

The FSH Society Announces Inaugural World FSHD Day (June 15, 2016)

FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD (June 14, 2016)

Atlanta Resident Spencer Wyckoff to Appear on NBC’s “American Ninja Warrior” to Raise Awareness about FSH Muscular Dystrophy (June 6, 2016)

The FSH Society Celebrates 25th Anniversary of Helping Patients and Families with Muscular Dystrophy (February 29, 2016)

Luxury Accessories Company Anson Calder Announces Partnership with FSH Society to Raise Awareness of Muscular Dystrophy (February 2, 2016)

FSH Society Awarded Four-Star Rating by Charity Navigator for Eighth Consecutive Year (December 8, 2015)

Gene Interference Technology Used Against FSH Muscular Dystrophy Genetic Defect (November 4, 2015)

FSH Society International Research Consortium Gathers Researchers and Clinicians from Around the World in Race to Cure FSHD (October 1, 2015)

Super Bowl 50 Tickets to be Auctioned to Benefit Award-Winning Non Profit 2nd Annual Musclepalooza Concert to Benefit the FSH Society and Muscular Dystrophy Research (September 24, 2015)

“Glee” Star Max Adler Hosts Charity Gala to Benefit FSH Muscular Dystrophy Research (September 22, 2015)

FSH Society Beneficiary of Variety of Fall Fundraising Events (September 1, 2015)

First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology (July 27, 2015)

FSH Society Awards New Round of Research Grants to Support Critical Research on FSH Muscular Dystrophy (July 24, 2015)

Nationally Renowned Pianist Steven Blier and Soprano Julia Bullock Perform to Benefit FSH Society (June 22, 2015)

FSH Society Awarded Four-Star Rating by Charity Navigator for Seventh Consecutive Year (June 17, 2015)

International Conference Brings Together Key Stakeholders to Advance Clinical Trial Readiness for FSHD (May 29, 2015)

FSH Society Challenges #Indy500 Fans to #CureFSHD with New PSA (May 21, 2015)

FSH Society Awards $485,000 in Grants for Research Dedicated to FSH Muscular Dystrophy (April 28, 2015)

FSH Society Hosts Patient Meetings across the Country (April 11, 2015)

Share to be Aware: FSH Society Launches #CureFSHD Campaign (March 3, 2015)

A Look Back: FSHD Research Advances in 2014 – January 13, 2015

Pianist Steven Blier and Grammy Award-Winner Sylvia McNair to Perform Together for FSH Society Benefit – September 16, 2014

The FSH Society Awards Three Research Grants to Support the Search for Effective FSHD Treatment – September 09, 2014 

Massachusetts Senator Elizabeth Warren Expresses Support for FSH Society’s International Meeting in Boston – August 18, 2014

FSH Society’s International Meeting to Bring Together Patients and Researchers From Around the World to Explore New Insights on Rare Disease – August 05, 2014

FSH Society Launches #FSHDselfies Social Media Awareness Campaign Featuring Max Adler of “Glee” – July 07, 2014

Opera Singer Frederica von Stade and Pianist Steven Blier to Perform Benefit Concert for FSH Society – June 11, 2014

Michelle Mackay and Retired Kellogg’s CEO David Mackay Host Second Annual FSH Society Fundraiser – May 29, 2014

FSH Society Announces Honorary Board Committed to Raising FSHD Awareness – April 29, 2014

FSH Society Named One of “Ten Charities Worth Watching” by Charity Navigator – April 10, 2014

The FSH Society Issues Six Research Grants to Propel Understanding and Treatment of FSHD – March 24, 2014

GE Chairman’s Award Benefits FSH Muscular Dystrophy Research – March 03, 2014

FSH Society Makes Notable Progress in Funding, Research and Patient Engagement in 2013 – February 10, 2014

First FSH Muscular Dystrophy High-Throughput Drug Discovery Study Published – February 06, 2014

Human Muscle Growing in Mice Provides a New Research Tool for FSH Muscular Dystrophy – January 24, 2014

Adveq Provides FSH Society Generous Gift After Witnessing Employee’s Journey – January 14, 2014

University of Massachusetts Medical School Opens New Center for FSHD Research and Training – November 15, 2013

FSH Society Honored as 2013 Top-Rated Nonprofit – October 31, 2013

Max Adler of “Glee” to Host October 6 FSHD Fundraiser in Irvine – September 16, 2013

Pianist Steven Blier and Tony Award-Winner Judy Kaye to Perform Together to Benefit the FSH Society – September 09, 2013

The FSH Society Issues Research Grant for Developing New Facioscapulohumeral Dystrophy Muscular Measurement Tool – August 06, 2013

Peach State Quartet to Sing for FSH Muscular Dystrophy Research – August 05, 2013

Michelle Mackay and Retired Kellogg’s CEO David Mackay to Host FSH Society Fundraiser – July 02, 2013

FSH Society for Muscular Dystrophy is One of “Ten Charities Worth Watching” – May 15, 2013

Boston College Grad Partners with FSH Society for “Friends Supporting Hope” Fundraising Event – April 22, 2013

FSH Society Ranks among America’s Top Charities – April 08, 2013

A Long-Awaited Mouse Offers a New Animal Model for FSH Muscular Dystrophy – April 04, 2013

The Centers for Disease Control Spotlights FSH Muscular Dystrophy – February 11, 2013

The FSH Society Answers Questions About the New Gene for FSH Muscular Dystrophy – January 24, 2013

Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting – November 08, 2012

Celebrities Come Out for FSH Muscular Dystrophy – October 03, 2012

Musical Stars Shine for FSH Muscular Dystrophy– September 25, 2012