Past Events

Date/Time Event Event
Sep 14 St. Louis Walk & Roll to Cure FSHD
Central Park, Chesterfield MO
Saturday, September 14, 2019
9:00 am - 1:00 pm
Walk and Roll to Cure FSHD
Sep 14 Columbus Walk & Roll to Cure FSHD
Coffman Park Pavillion, Dublin OH
Saturday, September 14, 2019
8:00 am - 12:00 pm
Walk and Roll to Cure FSHD
Sep 14 Chicagoland Walk & Roll to Cure FSHD
Citizen’s Park – Amphitheatre, Barrington IL
Saturday, September 14, 2019
8:00 am - 12:00 pm
Walk and Roll to Cure FSHD
Sep 11 Webinar: About CBD and medical marijuana
Wednesday, September 11, 2019
12:00 pm - 1:00 pm
Sep 7 Utah Walk & Roll to Cure FSHD
Sugar House Park, Salt Lake City UT
Saturday, September 7, 2019
8:00 am - 12:00 pm
Walk and Roll to Cure FSHD
Sep 7 Colorado Walk & Roll to Cure FSHD
Phillip S. Miller Park, Castle Rock CO
Saturday, September 7, 2019
8:00 am - 12:00 pm
Walk and Roll to Cure FSHD
Sep 5 FSHD Connecticut Connections
Thursday, September 5, 2019
7:00 pm - 8:30 pm
Aug 29 Radio show - Meet Heather Green, forensic psychologist
Thursday, August 29, 2019
9:00 pm - 10:00 pm
Aug 25 Wisconsin Chapter Virtual Meeting
Sunday, August 25, 2019
8:00 pm - 9:00 pm
Aug 24 Western Washington FSHD Community Group Meeting
Saturday, August 24, 2019
10:00 am - 11:30 am
Aug 15 Lexi Pappas' 3rd Annual Charity Bartending Event
McGreevy’s Sports Bar, Boston MA
Thursday, August 15, 2019
7:00 pm - 9:00 pm
Aug 11 Bay Area Chapter Meeting
Stanford Hospital, Hoover Pavilion, Palo Alto CA
Sunday, August 11, 2019
1:00 pm - 3:00 pm
Aug 10 Webinar: CRISPR strategy to treat FSHD
Saturday, August 10, 2019
2:00 pm - 3:00 pm
Aug 10 Dr. Perlingeiro Presentation at the University of Minnesota
Cancer & Cardiovascular Research Building, Minneapolis MN
Saturday, August 10, 2019
9:45 am - 1:30 pm
Aug 6 CANCELLED: Austin Support Group Meeting
Twin Oaks Branch Austin Library, Austin TX
Tuesday, August 6, 2019
10:00 am - 12:00 pm
Aug 3 Kansas City Support Group Meeting
The Heartland Institute for Clinical and Translational Research, Fairway KS
Saturday, August 3, 2019
1:00 pm - 3:00 pm
Aug 1 FSHD Connecticut Connections
Thursday, August 1, 2019
7:00 pm - 8:30 pm
Jul 31 Radio show: Alan Brown of NFL Films
Wednesday, July 31, 2019
9:00 pm - 10:00 pm
Jul 27 Western Washington FSHD Community Group Meeting
Saturday, July 27, 2019
10:00 am - 11:30 am
Jul 14 Columbus Chapter Meeting
Nationwide Children’s Hospital’s, Center for Gene Therapy, Columbus OH
Sunday, July 14, 2019
1:00 pm - 3:00 pm
Jul 13 Arizona Chapter Lunch Gathering
Brother John’s Beer, Bourbon & BBQ, Tucson AZ
Saturday, July 13, 2019
12:00 pm - 2:00 pm
Jul 13 Pacific Northwest Chapter meeting - Bellevue WA
Collaboration Center, Lincoln Square South, Level 2, Bellevue WA
Saturday, July 13, 2019
11:00 am - 1:00 pm
Jul 11 FSHD Connecticut Connections
Thursday, July 11, 2019
7:00 pm - 8:30 pm
Jun 29 Chicagoland Chapter Meeting
Mt. Prospect Public Library, Mount Prospect IL
Saturday, June 29, 2019
2:30 pm - 4:30 pm
Jun 26 FSH Society Radio with Belinda Miller, author
Wednesday, June 26, 2019
10:00 pm - 11:00 pm
Jun 22 Team FSHD Skyland Trail - RAAM Finish Line Celebration
Annapolis City Dock, Annapolis MD
Saturday, June 22, 2019
All Day
Jun 20 Atlanta Watch Party: King & Queen Building Lighting in Honor of World FSHD Day
Uncle Julio’s Mexican Restaurant, Sandy Springs GA
Thursday, June 20, 2019
7:00 pm - 8:30 pm
Jun 20 St. Louis Chapter Meeting & World FSHD Day Celebration!
Central Park, Chesterfield MO
Thursday, June 20, 2019
6:00 pm - 8:00 pm
Jun 20 New England Chapter Watch Party for World FSHD Day!
Blackmoor Bar & Kitchen, Charlestown MA
Thursday, June 20, 2019
6:00 pm - 9:00 pm
Jun 20 Colorado Chapter Meeting & World FSHD Day Celebration!
University of Colorado Anschutz Medical Campus, Aurora CO
Thursday, June 20, 2019
4:00 pm - 6:00 pm
Jun 15 East Tennessee Chapter Launch & Member Meeting
Seven Islands Birding Park, Kodak TN
Saturday, June 15, 2019
2:00 pm - 4:00 pm
Jun 13 Team FSHD Skyland Trail - RAAM Kickoff Party
Urge Gastropub and Whiskey Bank, Oceanside CA
Thursday, June 13, 2019
4:00 pm - 7:00 pm
Jun 9 Milwaukee Chapter Virtual Meeting
Sunday, June 9, 2019
8:00 pm - 9:00 pm
Jun 9 New York City Chapter Launch & Member Meeting
Community Room, New York NY
Sunday, June 9, 2019
3:00 pm - 5:00 pm
Jun 8 Webinar: Stance control braces
Saturday, June 8, 2019
2:00 pm - 3:00 pm
Jun 8 Cosie Laurello Memorial Run & Walk
Fischer’s Pine Lake, Jefferson OH
Saturday, June 8, 2019
7:00 am
Jun 6 FSHD Connecticut Connections
Thursday, June 6, 2019
7:00 pm - 8:30 pm
Jun 2 Western PA Chapter Meeting
National Aviary Allegheny Commons Park, Pittsburgh PA
Sunday, June 2, 2019
2:00 pm - 4:00 pm
May 29 FSH Society Radio on lemonade recipes
Wednesday, May 29, 2019
10:00 pm - 11:00 pm
May 22 Webinar - FSHD 101 with Dr. Samantha LoRusso
Wednesday, May 22, 2019
12:00 pm - 1:00 pm
May 19 Atlanta Chapter @ the MDA "You are my sunshine" Family Cookout
AMS Vans mobility company, Tucker GA
Sunday, May 19, 2019
2:30 pm - 4:00 pm
May 19 Bay Area Chapter Support Group Meeting
Stanford Hospital, Hoover Pavilion, Palo Alto CA
Sunday, May 19, 2019
1:00 pm - 3:00 pm
May 18 Tampa-area member meeting/Team FSHD Skyland Trail send-off party
The Bikery, St. Petersburg FL
Saturday, May 18, 2019
4:00 pm - 8:00 pm
Team FSHD Cycling at RAAM starting line
May 18 Greater Philadelphia Chapter meeting
Bryn Mawr Rehabilitation Hospital, Malvern PA
Saturday, May 18, 2019
10:30 am - 1:30 pm
May 11 Greater Milwaukee Chapter Meeting CANCELLED
New Berlin Public Library, New Berlin WI
Saturday, May 11, 2019
1:00 pm - 3:00 pm
May 2 FSHD Connecticut Connections
Thursday, May 2, 2019
7:00 pm - 8:30 pm
Apr 28 Bay Area FSHD Family Day Conference
Sunday, April 28, 2019
1:00 pm - 6:00 pm
Apr 27 LA Connects chapter meeting
Santa Monica College Bundy Campus, Los Angeles CA
Saturday, April 27, 2019
1:00 pm - 5:00 pm
Apr 24 FSH Society Radio on Living, Loving, Caring, Sharing
Wednesday, April 24, 2019
10:00 pm - 11:00 pm
Apr 13 Tampa chapter meeting
Vxchnge Office, Suite 302, Tampa FL
Saturday, April 13, 2019
11:00 am - 1:00 pm
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