UMass study seeks volunteers

Physicians and researchers at the University of Massachusetts Medical School (UMMS) seek individuals with facioscapulohumeral muscular dystrophy (FSHD) to participate in an FSHD Biomarker Study. This will be conducted by Dr. Robert H. Brown, Jr. and Lawrence J. Hayward, M.D., Ph.D. This study focuses on explaining the variability of FSHD, especially within the same families, … Read more of “UMass study seeks volunteers” »

Listen up! Columbus TV news features our Walk leader

Check out this audio from an interview with Sue Aumiller, director of our Columbus Ohio chapter, with Mark Blazor from Columbus’s top local station, 610-WTVN. Mark read the Columbus Dispatch’s story about Sue and her family and felt compelled to call. When you open one door, others open too. Way to go Sue!

Volunteers needed for Univ. of Minnesota studies

STUDY #1 Your participation is essential to advancing research on FSHD. Participants are sought for a University of Minnesota study on muscle stem cells in FSHD. The principal investigators are Michael Kyba, PhD, and Peter Karachunski, MD. What is involved? Study participants (FSHD and control individuals) will choose to provide any one or all of the following … Read more of “Volunteers needed for Univ. of Minnesota studies” »