Date(s) - Saturday, August 5, 2017
2:00 pm - 4:00 pm
Please join us for the inaugural Tulsa FSH Society meeting. In this initial meeting, we will have an opportunity to connect with other people and families dealing with FSHD, get to know one another, share our stories and also talk about what we’d all like to get out of this group (information, a place to talk, discussion about ongoing or upcoming research, guest speakers, etc). We will also discuss how often we’d like to meet and other general items so that we can make this group exactly what we want it to be.
So please join us for this initial meeting, we look forward to seeing you.
PLEASE RSVP to Robyn O’Leary by email or call (781) 301-6042. Please let us know how many will be attending so we can plan accordingly.
** Note: An accessible entrance is located at the far-end of the club, near the Pro Shop. We will be meeting in the Board Room.