Date(s) - Saturday, September 30, 2017
11:00 am - 2:00 pm
Triangle Presbyterian Church
Join hosts Ray & Leslie Huml for the Fall meeting of NC FSHers on Saturday Sept 30th, 2017 at Triangle Presbyterian Church (see: http://www.trianglepc.org/) from 11AM to 2PM EST.
At this month’s meeting, we welcome FSH Society CEO Mark Stone and Executive Director June Kinoshita, who will answer your questions about the current state of FSHD research and exciting opportunities to accelerate the development of treatments. Also joining us will be Laura Hagerty, PhD, science program officer for the Muscular Dystrophy Association, with an update on the exciting changes associated with the reorganization at MDA.
We will plan to provide a light lunch, snacks and beverages.
UPDATE: We are in the process of confirming an orthotic (physical therapist) expert to attend as well.
PLEASE RSVP to Robyn O’Leary by email or call (781) 301-6042. Please let us know how many will be attending so we can plan accordingly.