New York City Member Meeting

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Date(s) - Saturday, July 14, 2018
3:00 pm - 5:00 pm

Brookfield Place


Gather with individuals and families from greater New York City to share knowledge and support about living with FSHD, and to discuss what we as a community can do to have an impact on this disease. FSH Society CEO Mark Stone and Chief Community Development Officer Beth Johnston will attend and answer your questions about our strategy to accelerate the development of treatments. Some local members are organizing a Walk & Roll fundraiser as part of the next NYC Marathon and would like to see how many others are interested in participating, recruiting runners, and supporting their efforts. We are activating! Don’t miss out!

The FSH Society thanks John Gunther for kindly hosting this meeting. For day-of contact, John can be reached at 917-789-4960 or

Driving directions: Exit car on Southbound West Street between Vesey Street and Liberty Street. Directly across from 911 Memorial, enter building at Brookfield Entrance (see photo). Enter building and head away from West Street and see sign for elevator (see photo).  Take Elevator to Lobby (L button) and proceed into building staying to the left to the security desk (see photo; someone from the Society will greet you after you exit the elevator) to go to the 40th floor.  

The closest parking is 99 Murray Street between West and Greenwich Streets.  There is additional parking on 200 Murray Street between North End Avenue and River Terrace. All guests in need of parking are encouraged to visit to view these and other parking lots available.  

Please RSVP to Robyn O’Leary

Questions? Please contact June Kinoshita.