New York City FSH Society Reception

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Date(s) - Saturday, November 4, 2017
3:00 pm - 6:00 pm

Community Room


Join us for our next FSH Society member meeting for the New York City region.

Beth Johnston from the FSH Society will be on hand to share updates and answer your questions.  This is an opportunity to socialize with other individuals and families who are living with FSHD, share knowledge and information about local resources, and explore how we might work together to advocate for the FSHD community in the New York metropolitan area.

FSH Society member Jeff Sherman will share a report and videos from his visits to a Canadian company that is developing exoskeleton technology. We are also inviting New York-based FSHD medical experts to the meeting. Watch this space for updates.

Please note: Due to the number of people interested in this event, we have moved the venue to accommodate a larger group.

New Location: Community Room – 185 West End Avenue at 69th street
The Community room is in the basement. Take the elevator to B and make a right out of the elevator to the end of the hall. There is a parking garage on West End between 66th and 67th and another on 70th street just off of West end between West End and Broadway (although there is a steep incline to walk up for this one). 

RSVP Robyn O’Leary at or 781-301-6042. 

Questions? Contact Beth Johnston at or call 781-301-6651.