Kansas City FSHD Family Day Conference

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Date(s) - Saturday, November 10, 2018
11:00 am - 6:00 pm

GRID Collaborative Workspace


Due to an abundance of RSVP’s for the Kansas City FSHD Family Day, we have changed the venue to accommodate everyone! Please see below for updated directions to GRID Collaborative Workspace and suggested hotels. Click here for the updated flyer.

Co-organized with Jeffrey Statland, MD, and his team at the University of Kansas Medical Center (KUMC), this meeting will update you on research ongoing at KUMC as well as from other leading FSHD centers. Guest speakers include Rabi Tawi, MD, from the University of Rochester and Scott Harper, PhD, from Ohio State. Experts in physical and occupational therapy, orthotics, and mobility aids will also be on hand to answer your questions. Click here to view the agenda.

If you have already RSVP’d with Kiley Sims at KUMC, you don’t need to register again. Otherwise, please complete the registration form below. Deadline is October 22.


  • From 435 E – Use right lane to take exit 81 for US-69 N/US-69 S
    Use right lane to keep right at fork and follow signs for I-69 S/College Boulevard
    Keep right and continue towards W 119th St
    Keep right, follow signs for 119th St to 12022 Blue Valley Parkway
  • From I-35 S – Follow I-35 S and US-69 S to W 119th St in Overland Park
    Take 119th St Exit from US-69 S
    Continue on W 119th St to 12022 Blue Valley Parkway

Here are suggested hotels for those coming from out of town:

  • Residence Inn, 12010 Blue Valley Parkway, Overland Park, KS 66213
    $109/night with FSH Family Day room block
  • Spring Hill Suites, 12000 Blue Valley Parkway, Overland Park, KS 66213
    $95/night – limited availability

AcceleronWe thank Acceleron Pharma for its generous support of FSHD Family Day conferences.

Questions? Contact June Kinoshita at june.kinoshita@fshsociety.org.