Miami FSHD Family Day Conference

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Date(s) - Saturday, February 23, 2019
1:00 pm - 6:00 pm

Lois Pope Life Center


Please scroll down to register. Deadline: February 15, 2019.

Join us for the first-ever FSHD Family Day Conference in Florida, locally hosted by Mario Saporta, MD PhD MBA, and his team at the Neuromuscular Division of the University of Miami Miller School of Medicine. This is a half-day immersion to learn from leading clinical experts and hear about exciting advances toward treatments. You will meet patients and families throughout the region and brainstorm about strengthening the FSHD community in south Florida.

At the meeting, we would like to share people’s favorite “tips and tricks” for living with FSHD. Please email with your ideas!

We will be posting the agenda and updates on this page.

Map and directions:

Questions? Please contact Robyn O’Leary at