Date(s) - Sunday, August 19, 2018
1:00 pm - 4:00 pm
Meeting location: TBD.
***If you have a suggestion for a meeting place, please contact Laurie Heyman at firstname.lastname@example.org***
This is a gathering for people with FSHD and their support network from the Los Angeles region, for networking, learning, advocacy and more!
As we begin planning for our Ghostly Gala to Vanish FSHD on October 21st, 2018, we’d love your help to brainstorm ideas for the silent and live auctions.
Organized by the FSH Society and the LA FSHD CONNECTS volunteers, the meeting provides opportunities for people to strategize about what our needs are as a group, whether it is physical therapy, caregiving, mobility aids, physician referrals, etc. We are creating a community of people who are connected by FSHD to wish to find support, answers, and empowerment.