Date(s) - Sunday, February 11, 2018
3:00 pm - 5:00 pm
Brickell City Centre Parking
Join us for our next FSH Society get-together for Miami members, kindly hosted by Ora and Isaac Prilleltensky at their condo in Brickell. This is an opportunity to share knowledge, experience, and comradery with individuals and families affected by FSHD.
- FSH Society’s June Kinoshita and Mark Stone will be joining us to answer questions about the latest research, clinical trials and the Society’s strategic plans.
- Ora Prilleltensky will lead a discussion on psycho-social strategies for improving well-being and managing challenges associated with FSHD.
- Together we will explore interest for future engagement with the local group and the FSH society.
Refreshments will be served. RSVP to Robyn O’Leary via email or call 781-301-6042 by February 9th, so we can plan accordingly and email directions to the condo.
The condo is next to Brickell City Center and a short block from the metro mover station. Valet parking is available at the condo, but there is limited availability of free parking. We would like to reserve the on-site free parking for those who have difficulty walking. Brickell City Center (a short walk) has free parking for the first two hours. If you have trouble walking and would like to use the on-site valet, please let us know and we will arrange it. Otherwise, please consider using public transportation, a ride service, or parking at Brickell City Center.