FSH Society International Research Consortium Workshop

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Date(s) - Monday, October 5, 2015 - Tuesday, October 6, 2015
All Day

Westin Boston Waterfront Hotel Marina Ballroom


Westin_waterfront_with_st-The_Westin_Boston_Waterfr-20000000001541819-500x375A meeting for FSHD Research Professionals and Clinical Researchers

Chairs: David Housman PhD, Stephen Tapscott PhD, Silvere van der Maarel PhD
Organizational chair: Daniel Paul Perez

The FSH Society’s 2015 Facioscapulohumeral Muscular Dystrophy (FSHD) International Research Consortium and Planning Meeting serves the following purposes: 1) Given the recent mechanistic, pre-clinical, translational and clinical breakthroughs with the potential to ameliorate the onset of FSHD it is critical for the community to convene and discuss new data and advances in FSHD; 2)  to discuss strategies to verify and independently corroborate the findings; 3)  to discuss focusing efforts and resources in the preclinical gap and translational phase of research; 4)  to improve diagnostic techniques and clinical criteria for FSHD; and 5)  to consider and evaluate with industry new and existing biomarkers, endpoints and therapies for the disorder.

The workshop has an open and free admissions policy with usually 95-120 attendees including clinicians, scientists and representatives of funding organizations. The workshop includes platform, poster presentations and round table discussions. Attendees are requested to submit abstracts in advance. Abstracts are scored on priority and allocated to platform or poster presentations. An abstract booklet will be available at the meeting and is sent to the attendees (see attached program and abstracts book from the prior year).

We expect this year’s meeting will be one of the best yet!  Please pass this invitation on to colleagues and students that may have an active interest in FSHD.

Day 1: Monday, October 5, 2015
8:00am-6:00pm [Breakfast & Lunch provided]

Day 2: Tuesday, October 6, 2015
8:00am-1:30pm [Breakfast & Lunch provided]


  • Abstracts:  Monday, September 14, 2015
  • Registration:  Wednesday, September 30, 2015
  • Assignments for Poster/Presentation:  Monday, September 21, 2015

There is no fee for the meeting but please register by e-mail with names of people attending from your lab/institution to Daniel Paul Perez (daniel.perez@fshsociety.org).  Attendees need to make their own arrangements for travel and lodging.  

Abstract Submission
Please send abstracts by Monday, September 14, 2015. Kindly indicate if you have a preference for a poster or a talk. Send as an e-mail in Word or PDF with the Subject:  “FSHD IRC Abstract.”  Abstracts should be sent to all four organizers: Daniel Paul Perez, David Housman, Stephen Tapscott and, Silvere van der Maarel (daniel.perez@fshsociety.org, dhousman@mit.edu, stapscot@fhcrc.org, maarel@lumc.nl).  

Hotel Reservations
Please arrange accommodations directly with the hotel of your choice. The conference host hotel is the Westin Boston Waterfront.

Acceleron Pharma
Association Française Contre les Myopathies (AFM)
aTyr Pharma
BioMarin Pharmaceutical
FSHD Canada
FSH Society
FSHD Global Research Foundation
Genomic Vision
Genzyme, a Sanofi Company
Idera Pharma
Muscular Dystrophy Association United States (MDAUSA)
Muscular Dystrophy Campaign United Kingdom
NIH Eunice Kennedy Shriver NICHD Senator Paul D. Wellstone MDCRC for FSHD at
University of Massachusetts Medical School
Regeneron Pharmaceuticals

Email daniel.perez@fshsociety.org
Phone  (781) 301-6650
Fax  (781) 862-1116