Denver-Metro Area FSH Society Member Meeting

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Date/Time
Date(s) - Saturday, March 25, 2017
12:30 pm - 3:30 pm

Location
Eloise May Library: May Meeting Room A

Categories


We are pleased to welcome 2 distinguished guests!

Dr. Jeffrey Statland has both clinical and research training in neuromuscular diseases, with a primary research interest is in FSHD. Dr. Statland’s current research includes an FSHD disease-specific patient reported health inventory, an FSHD specific functional rating scale, approaches for analyzing dynamic motion, and the electrical impedance myography. With Dr. Rabi Tawil at the University of Rochester Medical Center, he has established the FSHD Clinical Trial Research Network, a group of 7 FSHD specialty centers across the United States with a common goal of hastening drug development for FSHD. “By working hand in hand with the basic scientists and our international collaborators we not only learn about how to measure the disease progression in FSHD, but we also gain insight into the molecular underpinnings of FSHD, and the corresponding clinical expression in patients. Together we can develop the institutional infrastructure and tools to run high quality, efficient clinical trials.”

Dr. Statland will be discussing the preparation for clinical trials in FSHD – – update on genetics and implications for therapies; the clinical trial landscape; building the infrastructure for high quality clinical trials.

Dr. Matthew Wicklund, a researcher, provider, and Professor at the CU School of Medicine recently joined the Neurology team on February 1st, 2017. Before arriving in Colorado, Dr. Wicklund served as the Vice-Chair of Neurology at Penn State Health in Hershey, Pennsylvania, where he saw adult and pediatric patients. He spent much of his career directing neurology services at Air Force medical centers around the U.S. and United Kingdom and has focused much of his research career on acquired and genetic muscle diseases, especially the limb-girdle muscular dystrophies. Dr. Wicklund will see patients at the Neuromuscular Center at the University of Colorado Hospital on the Anschutz Medical Campus in Aurora, CO.

Dr. Wicklund will be discussing the overlap between FSHD and other proximally predominant genetic muscle diseases as well as changes coming to the University of Colorado Neuromuscular Division. 

Lunch will be provided.  Space is limited, so please reserve your spot well in advance!

RSVP to Robyn O’Leary at robyn.oleary@fshsociety.org or 781-301-6042

Please share this information with any patients, family members and friends who would have an interest in FSHD and may not be on our contact list. Thank you!

Questions? Contact Beth Johnston at Beth.Johnston@fshsociety.org or call (781) 301-6651

If you cannot attend but would like to remotely: Join from PC, Mac, Linux, iOS or Android: https://zoom.us/j/3648329628

Or by telephone, dial: (646) 558 8656, Meeting ID: 364 832 9628.