Date(s) - Saturday, July 22, 2017
11:00 am - 2:00 pm
Please join us for the first Charlotte FSH Society meeting. This meeting will feature Dr. Elena Bravver, MD, the Principal Investigator of the North Carolina site for the Acceleron trial, and Lisa Hart Ranzinger, MSN RN from Carolinas Healthcare System, Neurosciences Institute – Neurology Charlotte. They will discuss an overview of FSHD, as well as present a broad view of research in the field, both upcoming and current.
We will also have an opportunity to connect with other people and families dealing with FSHD, get to know one another, share our stories and talk about what we’d all like to get out of this group (information, a place to talk, discussion about ongoing or upcoming research, guest speakers, etc). We will also discuss how often we’d like to meet and other general items so that we can make this group exactly what we want it to be.
RSVP to Robyn O’Leary by email or call (781) 301-6042. Please let us know how many will be attending so we can plan accordingly.