2018 FSHD Connect Conference

Flamingo Las Vegas
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Date(s) - Saturday, June 9, 2018 - Sunday, June 10, 2018
All Day

Flamingo Las Vegas


Important notices:
Saturday, June 9 – Lunch is on your own.
Sunday, June 10 – 7:30-8:30 a.m. Breakfast served in El Dorado Foyer

Our FSHD Connect conference brings together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building. Our 2018 meeting will feature talks by thought leaders on the latest in scientific research and medical management of FSHD, living with FSHD, and raising “an army of activists.” Breakout sessions will address topics to help you cope and live better with FSHD, including exercise and physical therapy, strategies for dealing with practical and emotional transitions, caregiving, “life hacks,” and much more.

FSHD Connect Conference Schedule:
Saturday, June 9, 2018 – 1:00 PM to 5:00 PM PST
Sunday, June 10, 2018 – 8:30 AM to 5:00 PM PST
*Click here to review program book.
Note: Sunday afternoon sessions have been pushed back one hour later than originally scheduled.

Pre-Conference Activities:
Saturday, June 9, 2018 – 9:30 AM to 11:00 AM PST. Mindfulness Workshop. Flamingo Las Vegas, Carson City Ballroom.

CureFSHD Banquet:
A highlight of the conference will be the CureFSHD Banquet on the evening of Saturday, June 9, to celebrate the FSHD community. We will have “Researcher Roulette,” with FSHD researchers seated at every table to encourage great conversations and new friendships.
*Tickets for the CureFSHD Banquet will need to be purchased; banquet is not included as part of the conference registration.

We are offering a limited number of scholarships to help defray costs of registration and travel. The deadline for scholarship applications was March 1, 2018.

Questions? Please contact Robyn O’Leary via email or call 781-301-6042.

*Registration closed on Friday, May 25th.