2018 FSHD Connect Conference

Flamingo Las Vegas
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Date(s) - Saturday, June 9, 2018 - Sunday, June 10, 2018
All Day

Flamingo Las Vegas



Important deadlines:
March 1, 2018 – Scholarship applications are due
May 18, 2018 – Flamingo hotel reservation

May 25, 2018 – FSHD Connect Conference registration

Our FSHD Connect conference brings together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building. Our 2018 meeting will feature talks by thought leaders on the latest in scientific research and medical management of FSHD, living with FSHD, and raising “an army of activists.” Breakout sessions will address topics to help you cope and live better with FSHD, including exercise and physical therapy, strategies for dealing with practical and emotional transitions, caregiving, “life hacks,” and much more.

FSHD Connect Conference Schedule:
Saturday, June 9, 2018 – 1:00 PM to 5:00 PM PST
Sunday, June 10, 2018 – 8:30 AM to 5:00 PM PST
*Click here for draft agenda (updated March 9, 2018)

Pre-Conference Activities:
Saturday, June 9, 2018 – 9:30 AM to 11:00 AM PST. Mindfulness Workshop. Flamingo Las Vegas, Carson City Ballroom.
Saturday, June 9, 2018 – Morning, TBD. “FSHD Story Corps”, record podcasts with Tim Hollenback.

CureFSHD Banquet:
A highlight of the conference will be the CureFSHD Banquet on the evening of Saturday, June 9, to celebrate the FSHD community. We will have “Researcher Roulette,” with FSHD researchers seated at every table to encourage great conversations and new friendships.
*Please note the CureFSHD Banquet is not included in the FSHD Connect Conference registration.

We are offering a limited number of scholarships to help defray costs of registration and travel. The deadline for scholarship applications was March 1, 2018.

Overnight accommodations are available at the Flamingo Hotel. The FSH Society has  special conference rates per night (single or double occupancy), not including a $30 resort fee and taxes. As of this time, the hotel guarantees 50 accessible rooms with roll-in showers. For the best selection of accessible rooms, please reserve early.

$74 – Thursday, June 7
$154 – Friday, June 8
$154 – Saturday, June 9
$74 – Sunday, June 10
*excludes $30 daily resort fee and taxes

Flamingo Hotel Reservations: https://aws.passkey.com/go/SFFSH8
If you prefer to reserve by phone, please call the Reservation Center at 1-888-373-9855 to secure a reservation in our FSH Society Connect Conference room block (group code SFFSH8). Please be aware that a processing fee of $15.00 + tax per reservation will be incurred if you choose not to use the dedicated weblink. The closing date for this room block is May 18, 2018.

Questions? Please contact Robyn O’Leary via email or call 781-301-6042.