The Group’s bulletin board is available to anyone to post a question, talk with other members, and read other people’s messages. This group is moderated. You can read posts online at the Group site or sign up to receive individual emails or daily digest emails. The group mailing list functionality is available to any email address. Join here.
FSH Society Facebook Page
Click on “Like” to follow the page and get the latest news and updates from the FSH Society. You can post questions and comments and share our Facebook posts with your network. Visit the FSH Society Facebook Page.
FSH Society on Twitter
Our official Twitter account provides news, event information, and shares Tweets of interest. You can post questions and contact us via our Twitter account.
There are also several informal volunteer-run private Facebook groups including “FSH Friends,” “Teens and Young Adults with FSHD,” and “FSHD Parents” (for parents of a child with FSHD). These groups are private, and posts made on them will not appear on your public Facebook timeline. To join one of these groups, please fill out and submit the form below.