Patient Connect Conference

Westin copley bostonWe are planning our next Patient Connect conference for June of 2018 in Las Vegas. Details will be posted soon. In the meantime, we will be organizing dozens of local patient meetings and regional events. Stay informed by visiting the website often and checking out our event listings.

Our 2016 Patient Connect conference was held on Friday, November 11, (noon to 5:00PM) and Saturday, November 12, 2016 (9:00-5:00 PM), at Westin Copley Place Hotel in Boston, MA. The meeting brought together hundreds of patients and family members with top researchers, doctors and health experts for two days of immersive learning and community-building. The 2016 meeting featured talks by leaders in the field of FSHD, including reports from major clinical and research centers, question-and-answer panel sessions, and educational workshops. 

Download 2016 FSHD Patient Connect program here.
Slides and videos are now available here.

View details of our 2014 FSHD Connect conference.

View videos from our 2012 FSH Society patient conference

Questions? Contact us at or call 781-301-6651.