Events Calendar

2019

Date/Time Event Event
Sep 14 St. Louis Walk & Roll to Cure FSHD
Central Park, Chesterfield MO
Saturday, September 14, 2019
9:00 am - 1:00 pm
Walk and Roll to Cure FSHD
Sep 15 Bay Area Walk & Roll to Cure FSHD
Alameda Point, Alameda CA
Sunday, September 15, 2019
8:00 am - 12:00 pm
Walk and Roll to Cure FSHD
Sep 21 South Carolina FSHD Community & Chapter Startup Meeting
Surfside Library, Surfside Beach SC
Saturday, September 21, 2019
10:00 am - 12:00 pm
Sep 21 East TN Meeting and Social Gathering
the house of Peggy Glenn, Knoxville TN
Saturday, September 21, 2019
2:00 pm - 4:00 pm
Sep 25 Radio show: David Younger, PhD, on FSHD and intimate relationships
Wednesday, September 25, 2019
9:00 pm - 10:00 pm
Sep 28 Western Washington FSHD Community Group Meeting
Saturday, September 28, 2019
10:00 am - 11:30 am
Sep 29 Atlanta Walk & Roll to Cure FSHD
Chattahoochee Nature Center Ben Brady Lakeside Pavilion, Roswell GA
Sunday, September 29, 2019
10:00 am - 2:00 pm
Walk and Roll to Cure FSHD
Oct 3 FSHD Connecticut Connections
Thursday, October 3, 2019
7:00 pm - 8:30 pm
Oct 5 North Carolina Walk & Roll to Cure FSHD
North Carolina State University, Raleigh NC
Saturday, October 5, 2019
9:00 am - 12:00 pm
Walk and Roll to Cure FSHD
Oct 6 Pacific Northwest Walk & Roll to Cure FSHD
Bellevue Downtown Park, Bellvue WA
Sunday, October 6, 2019
8:00 am - 12:00 pm
Walk and Roll to Cure FSHD
Oct 6 Connecticut Walk & Roll to Cure FSHD
Hammonasset Beach State Park, Madison CT
Sunday, October 6, 2019
9:00 am - 12:00 pm
Walk and Roll to Cure FSHD
Oct 19 San Diego Chapter Kick Off Meeting
UCSD Center for Neural Circuits and Behavior (CNCB), La Jolla CA
Saturday, October 19, 2019
10:00 am - 12:00 pm
Oct 19 Greater Philadelphia Chapter Meeting
Whitpain Township Building, Blue Bell PA
Saturday, October 19, 2019
10:30 am - 1:30 pm
Oct 20 Chicagoland FSHD Family Day Conference
Sunday, October 20, 2019
12:00 pm - 6:00 pm
Oct 26 Western Washington FSHD Community Group Meeting
Saturday, October 26, 2019
10:00 am - 11:30 am
Oct 27 Los Angeles Walk & Roll to Cure FSHD
Wilson Park, Torrance CA
Sunday, October 27, 2019
10:00 am - 1:00 pm
Walk and Roll to Cure FSHD
Nov 4 FSHD Connecticut Connections & Special Guest Speaker
Monday, November 4, 2019
7:00 pm - 8:30 pm
Nov 9 North Carolina Chapter Meeting
Triangle Grace Church, Durham NC
Saturday, November 9, 2019
10:30 am - 1:00 pm
Nov 9 Kansas City Chapter Meeting
Frontiers: University of Kansas Clinical and Translational Science Institute, Fairway KS
Saturday, November 9, 2019
1:00 pm - 3:00 pm
Nov 16 New York City Family Day Conference
New York Athletic Club, New York NY
Saturday, November 16, 2019
10:00 am - 3:30 pm
New York City Skyline
Nov 16 2019 FSH Fundraiser in Honor of Zachary
Greenville Shrine Club, Greenville SC
Saturday, November 16, 2019
1:00 pm - 5:00 pm
Nov 23 Western Washington FSHD Community Group Meeting
Saturday, November 23, 2019
10:00 am - 11:30 am
Dec 5 FSHD Connecticut Connections
Thursday, December 5, 2019
7:00 pm - 8:30 pm
Dec 7 Webinar: The ABC's of clinical trials with Dr. Rabi Tawil
Saturday, December 7, 2019
2:00 pm - 3:00 pm

2020

Date/Time Event Event
Jun 25 2020 International Research Congress
Washington Hilton, Washington DC
Thursday, June 25, 2020 - Friday, June 26, 2020
8:00 am - 6:00 pm
Washington Hilton
Jun 27 2020 FSHD Connect
Washington Hilton, Washington DC
Saturday, June 27, 2020 - Sunday, June 28, 2020
8:00 am - 6:00 pm
Washington DC panorama
Jul 11 San Diego Walk & Roll to Cure FSHD
Harbor Island Park, San Diego CA
Saturday, July 11, 2020
8:00 am - 12:00 pm
Walk and Roll to Cure FSHD

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