Utah Chapter

Welcome to the Utah chapter page! 

This chapter was founded in March 2019 by Allison Calder. We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

The Walk & Roll  
It’s official – the 1st Annual Walk & Roll to Cure FSHD is open!!! Mark your calendars for Saturday, September 7th, 2019, at the Sugar House Park in Salt Lake City, UT. We hope you’ll be able to join us for this awesome event where we raise awareness, build our community, and raise funds toward the cure. You can register to participate, or support our event by making a donation HERE

To contact us directly, please email: UtahChapter@fshsociety.org

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of your local chapter: