Utah Chapter

Thank you for visiting the Utah Chapter of the FSHD Society which officially launched in March 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

The Walk & Roll  
It’s official – the 1st Annual Walk & Roll to Cure FSHD is open!!! Mark your calendars for Saturday, September 7th, 2019, at the Sugar House Park in Salt Lake City, UT. We hope you’ll be able to join us for this awesome event where we raise awareness, build our community, and raise funds toward the cure. You can register to participate, or support our event by making a donation HERE

To contact us directly, please email: UtahChapter@fshsociety.org

Visit the FSHD Society Events calendar to search for upcoming events in your area!

Don’t forget to follow us on FACEBOOK!

Please join us! Simply fill out the form below to become a member of your local chapter: