Thank you for visiting the Tampa Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
To contact us directly, please email: TampaChapter@fshsociety.org.
Visit the FSHD Society Events calendar to search for upcoming events in your area!
Don’t forget to follow us on FACEBOOK!
Please join us! Simply fill out the form below to become a member of the Tampa chapter: