Tampa Chapter

Welcome to the Tampa chapter page! 

This chapter was founded by Jane Pollock in May 2019. We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

On Saturday, May 18th, we’ll be hosting a member meeting as well as celebrating the launch of the FSHD Skyland Trail Cycling Team and their efforts to raise funds & awareness as they Race Across America in June!! We hope you can join us at the Bikery in Tampa for this fun event. Find more info & RSVP Here!!

To contact us directly, please email: TampaChapter@fshsociety.org

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of the Tampa chapter: