St. Louis Chapter

Welcome to the St. Louis Chapter page! We officially launched our Chapter on Nov. 1st with a great meeting at the Daniel Boone Branch Library. We are now putting together our plans for 2019 – stay tuned for updates! 

The Walk & Roll

It’s official – The 2019 Walk & Roll to Cure FSHD is up & running! We can’t wait to celebrate our inaugural fundraiser with you all. We have some big goals for this year, because we want a cure NOW! Please join us in this awesome event to raise awareness, build our community, and most importantly, fund the CURE for FSHD! Register to participate or support our event by making a donation!


To get in touch with us, please email Chapter Director Marsha Sverdrup at: