Thank you for visiting the St. Louis Chapter of the FSHD Society which officially launched in November 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
It’s official – The 2019 Walk & Roll to Cure FSHD is up & running! We can’t wait to celebrate our inaugural fundraiser with you all. We have some big goals for this year, because we want a cure NOW! Please join us in this awesome event to raise awareness, build our community, and most importantly, fund the CURE for FSHD! Register to participate or support our event by making a donation!
To get in touch with us, please email Chapter Director Marsha Sverdrup at: StLouisChapter@fshsociety.org.
Don’t forget to follow us on FACEBOOK!