San Diego Chapter

Welcome to the San Diego chapter page! 

We officially launched the San Deigo Chapter on May 1st, 2019! The chapter was founded by National Board Member, Amy Z. Bekier. We are now putting together our plan for 2019 – stay tuned for upcoming meetings and events!

We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email:

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of the San Diego chapter: