Welcome to the Pacific Northwest chapter page!
This chapter was founded by Susie Kanewske and officially launched on April 13th, 2019! We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Pacific Northwest Chapter Meeting on July 13th!
Please Save the Date for the next meeting of the Pacific Northwest Chapter! We’ll be in the same location as our Chapter Launch in April. Visit the event page for additional details. We hope to see you there, and look forward to building up our strong community here in the Pacific Northwest!
To contact us directly, please email: PacificNWChapter@fshsociety.org.
Though our Chapter officially launched in 2019, we held a Walk & Roll to Cure FSHD in 2018 in Puyallup, WA, and raised over $20,000! Here are some photos of that great event:
Visit the FSH Society Events calendar to search for upcoming events in your area!
Please join us! Simply fill out the form below to become a member of your local chapter: