North Carolina Chapter

Welcome to the North Carolina Chapter! 

We officially launched our Chapter on Sunday, October 7th, 2018 at our Walk & Roll to Cure FSHD fundraising event. We hope to help patients, caregivers, and their families connect and advocate for themselves and each other.

The Walk & Roll

This year, we exceeded our fundraising goals by raising over $35,000 through our inaugural Walk & Roll to Cure FSHD. A million THANK YOU’s to everyone who was involved with this fabulous event!

To reach us, please email: NCChapter@fshsociety.org