North Carolina Chapter

Welcome to the North Carolina Chapter! 

This chapter was founded by Meredith Huml and officially launched on Sunday, October 7th, 2018 at our Walk & Roll to Cure FSHD fundraising event. We hope to help patients, caregivers, and their families connect and advocate for themselves and each other.

Walk & Roll

Our second annual Walk & Roll to Cure FSHD will take place on Saturday, Oct. 5th, 2019 at North Carolina State University – Talley Student Union! JOIN US! You can register to participate or support the event by making a donation HERE!

Last year, we exceeded our fundraising goals by raising over $35,000 through our inaugural Walk & Roll to Cure FSHD. A million THANK YOU’s to everyone who was involved with this fabulous event!

To reach us, please email: