New York City Chapter

Thank you for visiting the New York City Chapter of the FSH Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email: NYCChapter@fshsociety.org

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of the NYC chapter: