New York City Chapter

Welcome to the New York City chapter page! 

Stay tuned as we plan our chapter events for 2019! 

We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

To contact us directly, please email: NYCChapter@fshsociety.org

Visit the FSH Society Events calendar to search for upcoming events in your area!

Please join us! Simply fill out the form below to become a member of the NYC chapter: