Mid-Atlantic Chapter

Welcome to the Mid-Atlantic Chapter!

Dear Mid-Atlantic Friends of the FSH Society:

As you probably know, there are very promising developments in FSHD research, including several that focus on potential therapeutic agents in the not-so-distant future.  After seeing this video from the Society‚Äôs recent conference in Las Vegas, I am certain you will agree that we need to do everything possible to advance this work.   

That is why we launched our Mid-Atlantic Chapter, founded in August 2018 by Manuel Gomez, with an excellent meeting on Sunday, August 4th.  We are committed to help expedite treatments for FSHD.

Needless to say, we welcome more volunteers to join our chapter, and also suggestions you may have to advance our work in fund-raising and education. Please feel free to contact me by email or phone (202-262-3981).

A HUGE thank you to everyone who attended, donated, and volunteered at our first annual benefit concert, “Pickin’ for a Cure“, which was held in Frederick, MD on March 2nd, 2019! A dedicated committee of volunteers spent countless hours putting together this great event, and we all had a wonderful time – and we raised over $9,000 for the cause! A special thank you to the two fabulous bands who performed for us, the Dirty Grass Players and Wicked Sycamore!

Manuel R. Gomez, DrPH, MS
Mid-Atlantic Chapter Chair

To contact us directly, please email: MidAtlanticChapter@fshsociety.org

Visit the FSH Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: