Thank you for visiting the Los Angeles Chapter of the FSHD Society which officially launched in August 2018. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Our first Walk & Roll to Cure FSHD will take place on Sunday, October 27th, 2019 in Torrance, CA at the Wilson Park on Crenshaw Boulevard. JOIN US! You can register to participate or support the event by making a donation HERE! If you’d like, please feel free to bring a picnic lunch for after the walk!
To contact us directly, please email: LosAngelesChapter@fshsociety.org.
Visit the FSHD Society Events calendar to search for upcoming events in your area!
Don’t forget to follow us on FACEBOOK!
Would you like to get involved? Simply fill out the form below:
Enjoy some photos from our recent Ghostly Gala to Vanish FSHD!