Daytona Beach Chapter

Thank you for visiting the Daytona Beach Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

We hope to help patients, caregivers, and their families connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Join Us for Our First Meeting on Saturday, August 31 at 1pm!

We are excited to be holding our first member meeting as a new chapter! This is a friendly, confidential meeting where you can share and learn from one another about local resources, tips and tricks for coping with the physical and psychological challenges, and offer and receive support.

There will be finger foods served. There is a nearby restaurant where we will continue socializing after the meeting, so feel free to bring your friends!

Please RSVP here!

To contact us directly, please email: DaytonaBeachChapter@fshsociety.org

Visit the FSHD Society Events calendar to search for upcoming events in your area!

Don’t forget to follow us on FACEBOOK!

Please join us! Simply fill out the form below to become a member of the Daytona Beach: