Connecticut Chapter

Hello, and welcome to the Connecticut Chapter page!

To reach us, please email:

We have been doing virtual support group meetings for quite a while now, and we would love for you to join us! All are welcome – please call in from anywhere. Patients, family members, and caregivers are encouraged to participate! We meet the first Thursday of the month via Zoom web conference, 7:00pm – 8:30pm EST.  

Save the Date: Our first Walk & Roll to Cure FSHD will take place on Sunday, Oct. 6th, 2019. More details will be announced soon! 

To join from PC, Mac, Linux, iOS or Android:
Or iPhone one-tap : +16465588656,,788246660#
Or Telephone: +1 646 558 8656
Meeting ID: 788 246 660

RSVP to Kathy at or Sarah at

Visit the FSH Society Events calendar to search for upcoming events in your area!

Would you like to get involved? Simply fill out the form below: